This Is MS Multiple Sclerosis Knowledge & Support Community

Totally agree with everything that's been said.

Dignan said:

I can just imagine a lot of neuro's saying to their patients, "If you're doing well on CRAB X, maybe you should stick with it since we have 15-20 years of data on its side effects. Wait a while to see what the safety profile of this new med looks like after a couple of years."

This is exactly the way my neuro sounded when I even asked about oral medications. I really don't care though because as I tell my family-he's not God. I think I do more research than he does. I am currently doing okay on Rebif but I absolutely hate the injections. It's not just the pain and side effects, it's the total interruption of my life. I don't want to sound whiny because I know we're lucky to have any medications available. I just think that being able to take a pill at any time of the day with no big production would make having MS a little less horrible for me. If they come out with an oral medication that is even as effective as the CRABs, I want that chance to make up my own mind. Even if that means going to a new neuro.

Lyon wrote:at that point it will be time to let our doctors know that they are the employees and we are the boss

and we got da bat!

CureOrBust wrote:and we got da bat!

Whoa there big guy!! What if the oral medication released in 2009 happens to be encapsulated parasite eggs?

Possibly that would cause your bat to droop a little?

Bob

viper498 wrote:It would be really sad if a drug like FTY720 wouldn't emerge in the market until 2020, especially considering that it is basically just another "band-aid" drug, not a definite fix by any means.

Brock

I agree. That's like the one thing I stay optimistic about. I would really be sad