Posted: Wed Jan 21, 2009 3:37 pm
Well, they did it. They told me to stop my FTY70 even if my lymphocytes were at .3. They did not want such a drastic decrease in my lymphocytes... now they are afraid of complications.
I am getting nervous too because I know that there are nasty unforeseen complications with many study drugs.. I don't want my brain to rot...!!!
I will restart it she says when my count is up to .6. If it drop again, I will not be able to continue on the drug. I KNOW that I have been much lower for 2 years....was this a time bomb just waiting to explode. I am fine now...
later, Carole
I am getting nervous too because I know that there are nasty unforeseen complications with many study drugs.. I don't want my brain to rot...!!!
I will restart it she says when my count is up to .6. If it drop again, I will not be able to continue on the drug. I KNOW that I have been much lower for 2 years....was this a time bomb just waiting to explode. I am fine now...
later, Carole