Page 1 of 1
FTY 720 Primary Progressive Study
Posted: Thu Jan 14, 2010 5:52 pm
by Smilingface
Good news for FTY 720. After halting the study for primary progressive patients last fall, Novartis has re-opened enrollment. I was scheduled for the screening to enter the trial today. Yea!
Posted: Thu Jan 14, 2010 6:01 pm
by carolew
yeh!!!!!!!!! good luck, Carole
Posted: Sun Jan 24, 2010 1:14 pm
by KateCW
This is the first time I've heard of this, please keep us posted.
Posted: Sun Jan 24, 2010 1:16 pm
by KateCW
I just noticed in your sig that you tried 4AP.I am anxious to try it while I still have a little mobility left. Can you tell me if it helped you? Are you still on it?
FTY 720 PPMS/4AP
Posted: Sun Jan 24, 2010 3:09 pm
by Smilingface
Hi KateCW,
I tried 4AP for 30 days and did not notice a change in my slow, awkward gait, so I stopped. I'm not sure why it did not work on me but I
would not hesitate to try it.
Posted: Sun Jan 24, 2010 4:16 pm
by KateCW
I guess it's the so-called "luck of the draw". A percentage of people are helped, it's easy to get excited, but we never know if we'll be in that group of people. Ampyra, as it is now called, won't be available here in Canada for a few months and my neuro won't prescribe it from a compounding pharmacy, so I'll have to wait a bit.
FTY720/PPMS
Posted: Sun May 30, 2010 5:16 pm
by Smilingface
It's been 21/2 months now since I swallowed the pink pill. I'm driving myself crazy trying to figure out if I'm actually on the drug or not. My neuro said to expect changes 3-6 months after the first dose so it's a little too early to tell. I have had one abnormal blood test --- cholesterol and mild headache and unexplained nausea once in awhile but that's about it. Being in this trial with all the testing for adverse effects has not been easy!
FTY720/fingolimod/Gilenia
Posted: Thu Jun 10, 2010 4:42 pm
by Smilingface