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Hi from a Bluenoser (Nova Scotia)
Posted: Sun Feb 07, 2010 9:29 am
by ToddH
Hello all,
I'm a semi-retired husband with SPMS. I was Dx'ed in '01 after a looong and tiring battle. I have all the usual symptoms, fatigue, spasticity, bladder, etc. I am putting a lot of faith in this newer CCVSI, am I being too optimistic?
ToddH
Posted: Sun Feb 07, 2010 10:31 am
by scorpion
Welcome ToddH!!! You have come to the right place for support and a if neccesary a place to vent! Welcome.
Posted: Tue Feb 09, 2010 4:55 am
by lubylu
Welcome toddh , I too am a bluenoser you have come to a great place there is alot of information and support here
Posted: Tue Feb 09, 2010 5:07 am
by jimmylegs
Hi Todd, welcome to TIMS. As far as CCSVI goes, I would say be cautiously optimistic. From the sounds of the Buffalo testing, I think we can say at this stage you likely would find some evidence of CCSVI on testing. I don't imagine we can say whether your particular scenario will be easily treated. If you have not already done so, you can read about the experiences of other SPMS-ers post surgery, on the CCSVI tracking project 'sticky'.
http://www.thisisms.com/ftopic-8346-0-d ... -spms.html
HTH!
Thanks
Posted: Tue Feb 09, 2010 12:34 pm
by ToddH
jimmylegs, I checked out that link and read some great news! I know it is different for everyone, but I think this may be worth checking into deeper.
lubylu, do you still live in NS? I am in Truro.
scorpion, I promise not to be too vocal in my rants. hehe
thanks all
Posted: Tue Feb 09, 2010 2:59 pm
by lubylu
No i now live in alberta but lived in dartmouth area until 2006. Really miss the maritimes.
From Nova Scotia
Posted: Mon Mar 01, 2010 2:44 pm
by capegirl
Hi Toddh, I saw your posting and wanted to let you know that I am also from Nova Scotia, Cape Breton actually. Have had MS for 14 years, just joined today and looking for information on CCSVI.
Liz
Posted: Wed Mar 03, 2010 7:14 am
by globab
HI Todd....
another bluenoser here.... live in Yar. CO........
diagnosed since 05......
i visit the halifax clinic as you do to i am sure....
i am hopeful for this new finding as well.....
i am one of 4 in my family with MS.....
Posted: Fri Mar 12, 2010 3:47 am
by ToddH
Hi globab, yes my hfx visits to my neuro Dr. Bahn I hate so much. It reminds me of how sick I am.
Posted: Fri Mar 12, 2010 6:49 am
by gymbuff
Hi All,
Excuse my ignorance - what is a blue noser??
Posted: Fri Mar 12, 2010 2:39 pm
by ToddH
A person from Nova Scotia, we had a sailboat named the Bluenose. It was fast in it day.