Hi from London
Posted: Mon Mar 08, 2010 2:15 pm
I have been reading posts on this site for about 3 months now and have finally plucked up the courage to start posting! Actually I am not sure if it is courage or desperation!!!
I am not new to MS as I was diagnosed 15 years ago!! In that time I have been up and down, but mostly up I have had 2 gorgeous boys (unlike most people with MS my pregnancies were a nightmare and I was in a very bad way both times. Since my diagnosis I have always said that MS has made me the person that I am today and that I ought to be grateful as I have achieved things that I may never of done if I didn't have MS. I see things as challenge and if I could do mad things - like standing on the wings of a plane and wing-walking for my 30 birthday - then I am in control of my MS and it is not controlling me!!!
But things have changed over the last 2 years, and not in a good way!! I have had a lot more relapses and symptoms. I had managed to not have to take much in the way of tablets, but I am now on a whole cocktail of drugs!! In October my new neurologist decided that I should start taking a DMD!! Big shock and very scary at the thought of having to inject myself on a regular basis! After a lot of research and soul searching, I eventually settled on copaxone as I am allergic to ibuprofen and aspirin and because all the other treatments cause flu like symptoms which they advise you need to take ibuprofen to counteract it!!!! Anyway 3 months after starting I have had to stop as the skin site reactions were horrendous, welts that covered my entire thigh (and there is quite a bit of thigh ha ha)
So here I am!! I have been told by my MS nurse to consider one of the other therapies!!!!
Any advice will be greatly received. I am sorry this post has turned out so long but I don't actually talk about my MS very often to anyone!!!
I am not new to MS as I was diagnosed 15 years ago!! In that time I have been up and down, but mostly up I have had 2 gorgeous boys (unlike most people with MS my pregnancies were a nightmare and I was in a very bad way both times. Since my diagnosis I have always said that MS has made me the person that I am today and that I ought to be grateful as I have achieved things that I may never of done if I didn't have MS. I see things as challenge and if I could do mad things - like standing on the wings of a plane and wing-walking for my 30 birthday - then I am in control of my MS and it is not controlling me!!!
But things have changed over the last 2 years, and not in a good way!! I have had a lot more relapses and symptoms. I had managed to not have to take much in the way of tablets, but I am now on a whole cocktail of drugs!! In October my new neurologist decided that I should start taking a DMD!! Big shock and very scary at the thought of having to inject myself on a regular basis! After a lot of research and soul searching, I eventually settled on copaxone as I am allergic to ibuprofen and aspirin and because all the other treatments cause flu like symptoms which they advise you need to take ibuprofen to counteract it!!!! Anyway 3 months after starting I have had to stop as the skin site reactions were horrendous, welts that covered my entire thigh (and there is quite a bit of thigh ha ha)
So here I am!! I have been told by my MS nurse to consider one of the other therapies!!!!
Any advice will be greatly received. I am sorry this post has turned out so long but I don't actually talk about my MS very often to anyone!!!