This Is MS Multiple Sclerosis Knowledge & Support Community

I am in the Okanagan, scheduled to go to Mexico for CCSVI surgery in Sept. Sure hope it is not a mistake but I just can't do nothing about it anymore. Just doesn't seem to remit anymore

I just joined the forum tonight and thought I would post here before I introduce myself. I am in BC, just outside the Lower Mainland. It's nice to see fellow MS-er's here.

Hi BC folks! I am also in the Okanagan and am trying to help my cousin organize surgery. If you have gone for surgery (or are going) which medical tourism agency did you use? Would you reccommend them? I am looking for a BC based (or at least Canadian) company.

Thanks
D

Hi BC friends... I'm from the Fraser Valley. I haven't had CCSVI treatment yet, but I'm on a couple of waiting lists, so hopefully that will change. I go the the UBC MS clinic once a year.

NHE wrote:

DM wrote:My nurse has advised me that the procedure is very risky as people have died on the table during the procedure.

I haven't heard of this before. Do you have a reference?

NHE

2 people have died at Stanford University, one had a stint put in that dislodged and went to the heart and they couldn't save him the other had some kind of hemmoraging. That is why Stanford University has stopped the procedure, you can check their website, that is where I found the info

Hummer wrote:

NHE wrote:

DM wrote:My nurse has advised me that the procedure is very risky as people have died on the table during the procedure.

I haven't heard of this before. Do you have a reference?

NHE

2 people have died at Stanford University, one had a stint put in that dislodged and went to the heart and they couldn't save him the other had some kind of hemmoraging. That is why Stanford University has stopped the procedure, you can check their website, that is where I found the info

To the best of my knowledge, this is not entirely correct. Holly did not "die on the table" as DM's post suggests and which you seem to imply. She had a hemorrhagic stroke on the plane ride home. Her doctors determined that the stroke was unrelated to the stent procedure. She was believed to have had a genetic predisposition for this type of stroke since she had a family member who had a similar stroke. Holly was on blood thinners after the stent procedure and this likely made the bleeding much worse than it would have been otherwise.

Secondly, the ThisIsMS member known as Radeck was the individual that had the stent migrate. He underwent open heart surgery to remove the stent. He also did not "die on the table." Moreover, to the best of my knowledge, Radeck is still alive. His last post is dated March 21, 2010 which is roughly 4 months after he had his procedure.

Lastly, I am not aware of any serious complications arising from the balloon angioplasty treatment. However, I would be happy to read any references one might wish to provide.

NHE

I can not say how sorry I am for being misinformed. The last thing I want to do is put any negative twists on someones hopes. Please accept my apologies and thank-you for clarifying this

Hey, no problem. There's a lot misinformation out there. Some of it I suspect may even be deliberate.

NHE

NHE wrote: She was believed to have had a genetic predisposition for this type of stroke since she had a family member who had a similar stroke.

I thought this turned out not to be the case:

http://www.thisisms.com/ftopict-9321.html

Lastly, I am not aware of any serious complications arising from the balloon angioplasty treatment. However, I would be happy to read any references one might wish to provide.

http://www.thisisms.com/ftopict-12754.html

article link

http://www.springerlink.com/content/rt234q3n27368npx/
http://www.springerlink.com/content/g152w17820q32647/

patientx wrote:

NHE wrote: She was believed to have had a genetic predisposition for this type of stroke since she had a family member who had a similar stroke.

I thought this turned out not to be the case:

http://www.thisisms.com/ftopict-9321.html

Thanks for the link. I must have missed that among all the posts.

Lastly, I am not aware of any serious complications arising from the balloon angioplasty treatment. However, I would be happy to read any references one might wish to provide.

http://www.thisisms.com/ftopict-12754.html

Yes, there is a risk of clotting with the angioplasty. The hope is that the risk is manageable with the use of blood thinners. Dr. Sclafani has indicated that blood thinners must be used following angioplasty to prevent clotting.

NHE