Greetings from Tokyo
Posted: Thu Apr 21, 2005 2:34 am
My 15-year-old daughter was recently diagnosed with MS. This was understandably heartbreaking for our family. She has started on Betaferon at the suggestion of our neurologist.
Let me point out that a) we are American and don't speak Japanese b) Betaferon is the only disease modifying drug on the market in Japan c) Japan doesn't have much MS. For these reasons, I am especially grateful for the information I am finding on your site. I realize that it is pretty much up to me to stay on top of what is going on in the MS world.
We see the neurololgist later this week and I will try asking about LDN, antibiotic therapy and statins. I don't expect him to know much about any of these therapies, but you never know.
Is anyone out there the parent of an MS teen?
thanks
Let me point out that a) we are American and don't speak Japanese b) Betaferon is the only disease modifying drug on the market in Japan c) Japan doesn't have much MS. For these reasons, I am especially grateful for the information I am finding on your site. I realize that it is pretty much up to me to stay on top of what is going on in the MS world.
We see the neurololgist later this week and I will try asking about LDN, antibiotic therapy and statins. I don't expect him to know much about any of these therapies, but you never know.
Is anyone out there the parent of an MS teen?
thanks