Newbie
Posted: Tue Aug 24, 2010 2:28 pm
Hi
My name is David. I'm 61. My MS symptoms began in 1994. They were very minor then, just a little numbness in my left thumb. In 1996 I started getting the electric shock sensation running down my spine. I forget what they call that. The DX came at that time. Happily the electric shock sensation went away quickly and never returned. But there has been a continuous gradual loss of ability on my left side over the years. Foot drop is pretty bad on the left foot and the leg is weak. My self-assessed EDSS is 5. I can walk about 100 meters without my cane or leg brace. Foot drop makes it hard to go much further without tripping. With my foot brace on I can go about 1 mile on smooth pavement but very slowly.
Neither of the neuros I've been to was able to tell me what type of MS I have. Since I don't have relapses or remissions I'm guessing PPMS. I don't use any of the MS meds. I followed the Swank diet for quite a few years but unfortunately my appetite for fat foods caused me to fall off the wagon.
Like many others on this site I am very interested in CCSVI. I have not had the Liberation procedure yet but am strongly considering it.
I hope to get to know all of you soon.
My name is David. I'm 61. My MS symptoms began in 1994. They were very minor then, just a little numbness in my left thumb. In 1996 I started getting the electric shock sensation running down my spine. I forget what they call that. The DX came at that time. Happily the electric shock sensation went away quickly and never returned. But there has been a continuous gradual loss of ability on my left side over the years. Foot drop is pretty bad on the left foot and the leg is weak. My self-assessed EDSS is 5. I can walk about 100 meters without my cane or leg brace. Foot drop makes it hard to go much further without tripping. With my foot brace on I can go about 1 mile on smooth pavement but very slowly.
Neither of the neuros I've been to was able to tell me what type of MS I have. Since I don't have relapses or remissions I'm guessing PPMS. I don't use any of the MS meds. I followed the Swank diet for quite a few years but unfortunately my appetite for fat foods caused me to fall off the wagon.
Like many others on this site I am very interested in CCSVI. I have not had the Liberation procedure yet but am strongly considering it.
I hope to get to know all of you soon.
