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Hello - From the Gray State - Ohio

Posted: Sun Jan 23, 2011 3:00 pm
by SBSB
HI All,

Diagnosed in 2008. Copaxone for awhile, could not tolerate shots everyday, site reactions were horrible. On Avonex now, just did a follow up with the Doc, I thought I wasn't doing to bad,, we did the motor skills test, I failed. My balance has been getting worse but, I have been adjusting. He said, 'Sometimes there are issues with out having a noticed exacerbation'

So are they silent?

Going for MRI tomorrow, and JC virus test. He is considering Tysabri. I am REALLY uncomfortable with that.. I have looked at some of the blogs here, but have not seen any posts from someone who has gotten PML from it..

Any opinions, or additional resources is greatly appreciated.

Re: Hello - From the Gray State - Ohio

Posted: Sun Jan 23, 2011 9:55 pm
by NHE
SBSB wrote:Going for MRI tomorrow, and JC virus test. He is considering Tysabri. I am REALLY uncomfortable with that.. I have looked at some of the blogs here, but have not seen any posts from someone who has gotten PML from it..
Here's one thread which discusses a PML case.

http://www.thisisms.com/ftopicp-139087.html#139087


NHE