Newly Diagnosed, looking to blog about it
Posted: Fri Mar 11, 2011 6:15 pm
Hi,
My name is Bob. I have MS. (*clap*)
I am going on Rebif tomorrow. I am going to "shoot" for the plus side of that 30% reduction of holes in brains. I am not terribly convinced though. I have read a lot about MS. I think if I can snag 15% less new holes in the brain, it will be worth at least a couple billion dollars, because I am worth it.
I have reduced my saturated fat intake to less that 10g/day. I drink cod liver oil now (molecularly distilled). I take lipoic acid, ginkgo, b vitamins, multi-vitamins, lots of fruit, Nuvigil, 5000u of Vit D3, and starting rebif tomorrow. I think I may start NAC as well. I have very good reasons for each. I will save the explanations. Most of this is covered in other threads. If not, I would be happy to elaborate.
If I get another piece of marketing material from Rebif... I swear. Everyone looks so happy in the pictures, it makes me want to go buy something from JC Penny.
Anyway, hello fellow people with MS. I hope to be with you all for at least another 8 to 25+ years. In that time, I hope to make a lot of money so that I don't end up as state property.
Life is good. I really do feel that way. It may be fleeting and impermanent, but that's a source of profound meaning. I wouldn't ask for it any other way.
Some of my initial questions were how many lesions are a lot of lesions? I got 20+ scattered through by brain and one big one in my spine. I don't feel too messed up, though. I can walk and talk and feel good beside the fatigue. I got the MRI because I had optic neuritis in the past, and some numbness and funny feelings in my legs about 5 years ago. Last November my face went numb for about 3-4 weeks. That is when I went to my first MRI in January 2011.
The MRI was bitter-sweet. I am glad that I am not imagining things. I am sad that it wasn't my imagination. I am sure many of you can relate.
I know that when someone writes this much, it is difficult to read.
My name is Bob. I have MS. (*clap*)
I am going on Rebif tomorrow. I am going to "shoot" for the plus side of that 30% reduction of holes in brains. I am not terribly convinced though. I have read a lot about MS. I think if I can snag 15% less new holes in the brain, it will be worth at least a couple billion dollars, because I am worth it.
I have reduced my saturated fat intake to less that 10g/day. I drink cod liver oil now (molecularly distilled). I take lipoic acid, ginkgo, b vitamins, multi-vitamins, lots of fruit, Nuvigil, 5000u of Vit D3, and starting rebif tomorrow. I think I may start NAC as well. I have very good reasons for each. I will save the explanations. Most of this is covered in other threads. If not, I would be happy to elaborate.
If I get another piece of marketing material from Rebif... I swear. Everyone looks so happy in the pictures, it makes me want to go buy something from JC Penny.
Anyway, hello fellow people with MS. I hope to be with you all for at least another 8 to 25+ years. In that time, I hope to make a lot of money so that I don't end up as state property.
Life is good. I really do feel that way. It may be fleeting and impermanent, but that's a source of profound meaning. I wouldn't ask for it any other way.
Some of my initial questions were how many lesions are a lot of lesions? I got 20+ scattered through by brain and one big one in my spine. I don't feel too messed up, though. I can walk and talk and feel good beside the fatigue. I got the MRI because I had optic neuritis in the past, and some numbness and funny feelings in my legs about 5 years ago. Last November my face went numb for about 3-4 weeks. That is when I went to my first MRI in January 2011.
The MRI was bitter-sweet. I am glad that I am not imagining things. I am sad that it wasn't my imagination. I am sure many of you can relate.
I know that when someone writes this much, it is difficult to read.