This Is MS Multiple Sclerosis Knowledge & Support Community

Hi! I am new to this site and web forums all together. I am a 34 yr old disabled RN and mom of 2 great kids. MS has robbed me of my ability to work outside my home for the past 3 years. I recently had a baclofen pump placed, then removed 18 months later. I am so curious about CCSVI and if it really works. I am scared to get my hopes up, I did for the pump and was disappointed. Anyone that has had the procedure please share info, I'm just at a standstill on what to try next. I am on betaseron and a ton of oral meds, and am sick and tired of being sick and tired. Any advice/insight on CCSVI would be helpful. Thanks!

has anyone on here actually had ccsvi? successful or not please share your story.

hi katy welcome to TIMS. i'm sure you'll get a better response to your question if you post it directly in the CCSVI forum (in the treatments section).

thank you so much! I'm very new to all this, well not the MS part, that I have know about for over a decade.