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Hello, all!
Posted: Fri Apr 30, 2004 4:58 am
by CCmom
My name is Kim. I have a 16 year old son who was diagnosed with MS 3 years ago, after an initial diagnosis of encephalomyelitis. We are in the process of switching him from Rebif to LDN. He was on Avonex for over a year and had one of the worse exacerbations he has had, so his doctor switched him to Rebif. He has done okay on the Rebif, but the injections are very hard on him.
I find this board very helpful and informative, and I look forward to interacting with all of you! Have a great weekend!
Kim
INTRODUCTIONS...
Posted: Sun May 02, 2004 8:35 am
by 2gentle
HI KIM 
SO SORRY TO HEAR OF YOUR SON, AND HOPE HE FEELS BETTER SOON 
I'M GLAD YOU LIKE THIS BOARD,AND HOPE TO SEE YOU HERE MORE OFTEN.. 
"WELCOME!!!" FROM ONE MEMBER TO ANOTHER! IF I CAN HELP IN ANY WAY, OR ANSWER ANY QUESTIONS YOU HAVE, JUST SEND ME A MAIL, OK? TELL YOUR SON TO FEEL BETTER SOON FOR ALL HERE!
TAKE CARE..
Posted: Mon Dec 13, 2004 3:57 pm
by kspackrat
Welcome Kim! I am new here myself. I have looked back at things from my teen years that were probably small MS attacks that were written off as something else. I am not sure how I would have taken the diagnosis at your son's age. I have 2 sons of my own now, 10y and 5.5ys, I can not imagine how I would feel if it was them. So mom to mom I am sending you a HUG and a
It can not be easy having a child (even if he does think he is all grown up now
) with MS and having to make or help them make such major decisions as treatments, symptom management, etc on top of the normal everyday teen issues.
Good luck to both of you!
Posted: Tue Dec 14, 2004 5:34 am
by CCmom
Thank you, Monica. And welcome to the board yourself! Colby is doing really well right now as far as the MS goes. He has had no symptoms since starting LDN in June other than a minor minor minor flare up when he missed his LDN for 3 days. He's having his gall bladder removed later this month, so I am concerned over that causing a flare up, since he may have to stop his LDN due to a conflict with pain meds.
I'm sure you are wondering this with two small children, so I will go ahead and say it...We have NO family history for MS or any other autoimmune disease.
Take care, and have wonderful holidays!
Kim
Posted: Wed Dec 15, 2004 1:48 am
by Arron
wonderful to hear of Colby's progress, Kim. Here's to continued good health.
-a
Posted: Wed Dec 15, 2004 8:16 am
by CCmom
Thanks, Arron. I posted more info on his upcoming surgery and pain meds from his surgeon on another thread, if you're interested. It is his surgeons opinion that LDN will not hamper any pain medications that he might need. I will keep you all posted after he has the surgery on Monday! Thanks, again. He's just doing so very well these days. It is amazing after the last 3 years of ups and downs we have had. Of course, with RRMS you just never know, but for now, we're content with what we've got.
Kim