This Is MS Multiple Sclerosis Knowledge & Support Community

Hello,

I know this board isn't that busy yet, but was just wondering if everyone who visits could say a quick hello on this thread, so that we can get to know each other better.

My username is Bonnie. I have relapsing/remitting MS. Married, no children. I use copaxone to slow down the MonSter.

I think it is so cool that this board isn't funded by any of the drug companies, I didn't think that was possible nowadays.

How about you? Please send me a quick hello.

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Hello Bonnie and everyone else out there
My name is Elaine I was diagnosed relapsing/remitting MS 2002 but nuro seems to think that i have had it for a lot longer than that.I am 40 married with 3 kids on betaferon and swank diet.

LarryGC/LarryLDN DX RRMS 07/31/02. Started LDN 04/17/03.

I run MSWatchers on Yahoo and have an LDN ezBoard also.

My MS bag of tricks consists of Chiropractic (since 1989), Dr. Wayne Dyer's teachings (since 1993), Franklin Time Management system (since 1995) and LDN added this year. The other 3 stood the test of time, hopefully LDN will too.

44, married with 2 kids, 3 cars and 4 cats.

Greetings Elaine and Larry.

I forgot to mention my age. I am 43.

How did you both learn about this web site?

Hopefully, more folks will say hello, as the membership grows.

Someone posted the LDN review and when I forwarded it saying I didn't kow the source, the source told me it was theirs, so here I am.

I'm not going to be too involved though, I'm heading out on a road trip next week and won't be back or near a computer for a while.

Hi Everyone, nice to meet you all.

I am Sally, 62. married 35yrs to the same man . three children, 6 grands. and one dog. DX in 1976, Symptoms since 1964 (about the time some of you were born . Started out RR now SP since 1995/96. Was on 'Avonex then Copaxone and now finally LDN, which has stopped my Progression, so far.

It is nice to have a place to come and talk freely about things that are bothering us, and to talk about our meds, without the strong arm of the big drug companies shutting us up,

My 33 yr old Daughter has just recently been DX with MS....she has decided no meds, just meditation. That's her cure....I'll let you know ir it works.

I'll be back again soon. Thanks for being here.

Hugs, Sally

Hello Sally I am going to ask my nuro next time i see him about LDN as I have only just found out about it.Not sure how I will go getting it here in Australia. How long have you been on it for if you don't mind me asking?

love Elaine

Hi Sally,

Thanks so much for checking in. I'm with Elaine, I would love to hear more about LDN, a friend of mine and I were discussing whether it has been effective with secondary progressive MS, if you are bedridden, and I told her I would try to find out. I have the LDN homepage, but would appreciate any info you have, since you are also secondary progressive.

Actually I would love to give it a try as well. I'm not sure my doctor knows anything about it, so will ask at my next visit.

Wanted to say hello to you also, Elaine.

Hi everyone...I too think it is refreshing to come to a site where no one has an ax to grind. I'm 48 and had my first bout of Optic Neuritis in 1985. Have had numerous optic neuritis attacks since then but have done relatively well for about 15 years or so. Had very few problems....did so well that I only just informed my whole family about 2 years ago. I was going downhill...walking became a chore and my balance was slowly taking a dive. I started to search for something like one of the ABCR's. I thank God that I found the LDN before I started on that ABC merry go round. Now that I know how it works it would certainly explain my mild case for those first 15 years or so. You see I was very heavily into aerobic exercise. I had only started to decline once I slacked off of that exercise. Now that I know how the LDN works it all makes perfect sense to me. All those endorphins that I was creating with my aerobics were what kept me from declining...it was as if I was on the LDN all those years.
I am very happy to meet all of you and think this website has a lot of potential...{{{{hugs}}}. Joyce

Hi Everyone,

I have already posted on another thread but here goes again. My name is Deb, 47, diagnosed RRMS 02/00. Married 31 years to "the guy across the street", Rick, and we have two children, 28 and 22, and two grandchildren, 5 and 2.

I retired from nursing in January 2002 and won SSDI in July 2003. We live in rural Southcentral PA and I have no contact with any other MS'rs other than the people on these forums.

I have tried ABC and developed NAb's to A and B and chest pain with C. I now take Lipitor 40 mg everyday and seem to be doing much better since starting that treatment than anything else prior to diagnosis.

LDN seems to be the "drug of choice" these days, I will watch with interest for further developments in the months and years to come. I will speak with my pain management specialist and get his take on this phenomenon. Until then, I will continue with my current regimen while doing further research beyond testimonials.

I hope this forum will be a refeshing change. Let's chat!

Deb

~What?

...I'm MSndrstood

Merry Christmas to all.

Hi I'm Red, married, 50 years old and have two sons (28 & 26). I discovered I had ms this past August after a major flair up. I lost the sense of feeling in most of my body and lost control of my arms, hands and left leg. It was quite a shock to recieve not only that news but that I've had it for probably the last 20 years. I was treated at the Mayo Clinic and have pretty much gotten back to normal. I'm not taking anything for it as it seems to be rather minor with a flair up every 7 - 8 years. I am more aware of the symptoms now and try to have a more healthly life style and not to overexert myself which brings on the tingling and numbness in my hands and legs.

The kids are home for the Holidays and I wish you all the best

Hello Joyce, Deb and Red. Nice to see 3 new check-ins on this thread. I am looking forward to reading all of your future posts.

It is wonderful to have an entire MS population just a click away, isn't it? Helps us not feel so isolated.

I'm investigating LDN too. Sure wish they'd conduct a double blind study on it.

See you around, everyone.

Hi my name is Susannah. I am 33 years old and have rrms. I am not on any of the meds for it. I am controling my ms by exercise and sensible diet. I don't subscribe to any particular diet. Looking forward to hearing more from you all. Susannah

Susannah, I was 33 when I was dx too. Small MS world, isn't it? Of course I'm not 33 any more. Do you do weight strengthening exercises?

I'll see you around, thank you for telling us about yourself.

Hi Bonnie! As you know ms is hard to diagnose. I was diagnosed this year but have had symptoms of it for 10 years. Susannah