Page 4 of 22

Posted: Sat Jan 24, 2004 1:00 pm
by Bonnie
Welcome Aboard,

Brenda, Auntie Jane, and Maria

The board moves very slowly, but maybe if enough of us visit regularly, it will pick up.

Having said that, I'll be away for a few days, but will check back in when I return.

Nice to have an international site, isn't it? :o

My Introduction

Posted: Mon Jan 26, 2004 12:39 am
by mswp
8)
Hi all,

G'Day (without the Croc Hunter accent!)

I found this site earlier today and have been reading here and there. So far I like what I see and I have committed to myself to explore this fully.

Should I stay ? mmmm I guess we'll see how it goes.

For now here is a brief bio.

Aussie
Live in Melbourne, Victoria
45
Divorced, three children
Brand new Grandad (days ago)
:: proud as punch ::

Retired due to disability
Full Time Wheelchair User
PPMS DX 1998 (chair user by 2000)
Active MS Volunteer
MS Ambassador (public speaker and advocate)

ummmmm

that'll do....... 8O

Posted: Mon Jan 26, 2004 11:41 am
by BrendaH
Thanks for the welcome, Bonnie! Hope you had a nece trip!

A bientot,
Brenda

Posted: Mon Jan 26, 2004 11:43 am
by BrendaH
Oops! Typo - I meant 'nice' trip! :oops:

Brenda

i

Posted: Mon Jan 26, 2004 12:44 pm
by fringedgentian
test

Posted: Tue Jan 27, 2004 3:18 am
by AnnW
Hi, I'm Ann from south-east London, England, 47 years old. Diagnosed in 1994 after the birth of my third baby although first symptoms (ON) appeared when I was 21 (but nobody said anything about MS then). I have been married to Andy for 24 years and have three children, two girls 21 and 20 and one son 10. I was on Rebif from May 2003 until Christmas when I decided it really wasn't doing me any favours and stopped taking it. Since stopping the Rebif my mobility has improved and I can now walk (shakily) without my crutches. Before the Rebif I could walk about a mile or so very steadily.

LDN sounds interesting, but how does one go about getting it? Do you need a prescription?

Ann

Posted: Thu Jan 29, 2004 9:37 am
by diehlbhg@cbpu.com
Hi everyone, I'm new here. I was dx in Sept. 2002. Started on Avonex in Oct. Have change to rebif 6 months ago. I'm 34 married with 3 wonderful children! :D I'm a daycare provider and very busy with my 3 kids.

Hi from Amy

Posted: Fri Jan 30, 2004 6:26 pm
by Amy
Hi All

My name is Amy. I have RRMS. My original attack was on September 21, 1997. My right leg was yucky, and then it went into my left leg. My MRI's showed a big nasty lesion on my spine and 3 little ones in my brain. 6 months later, the spine lesion was gone. The brain ones have remained. Seven years later on September 28, 2003, I had an attack of optic neuritis.

All these years I was on the Swank diet. In the last year, however, I fell off the wagon slightly (I ate half of a dove bar in August...) due to the tragic death of my Dad, who was my best friend. My neuro thinks this brought on this latest attack.

Anyway, my elderly mother recently had a set of MRI's and she has lesions in her brain, which they say looks alot like a demyelinating disease. She denies any MS-like symptoms.

I have a great husband and 2 beautiful babies, ages 5 and 2. I am 44. I hope this MS thing crawls back to hell where it came from, because I don't have time for it.

Be Happy.

Amy

Hi

Posted: Fri Jan 30, 2004 6:53 pm
by september1968
Hi All ~
You all sound very nice. It's nice to be find a place where the "clicks" are not already formed.

Me..35 y/o Married w/3 kids, 6,8,& 12
Dx 11/03
2 Neuro's so far
Copax from Neuro 1, then Avonex from Neuro 2

Head still spinning... started the Swank Diet and am really missing chocolate and ice cream.. :(

Thoughts on Forum so far...

Posted: Sat Jan 31, 2004 5:45 pm
by mswp
Well,

I have to say, I have had a further look around, looks great! - Well Done Mr/Ms Admin (whoever you are) ......... :)

It's nice to see regular posts.....

Hi to all the newbies (new people, or newly diagnosed) ..... :)

Anyone need lessons on how to promounce G'Day, let me know! :) :lol:

Regards.

An introduction

Posted: Sun Feb 01, 2004 12:00 am
by crispy
Hi all, :D

I have been hanging around in the background for a few days and thought it was about time I introduced myself.

My name is Chris and I'm 52 - I was diagnosed some ten or eleven years ago and was retired from my job as a Computer Programmer shortly afterwards.

I have never been told that I fall into the PPMS category but as I have never had relapses, just a continual progression of symptoms, I think that must be it. I have never taken any medication, or been offered any, but I am now pushing my GP to let me try LDN.

I am just about mobile around the house, though my wife Cathy claims that I roll around the walls rather than walk. Balance and fatigue are my worst problems, I consider myself very lucky not to have experienced much in the way of pain that I read others are having, just cramps and tenderness.

That's enough for now, I have to write to my GP again, trying to speed things up.

All the best,
Chris P

Posted: Sun Feb 01, 2004 6:31 pm
by aeroangel

Hello! Hope no one minds but I have yet to be diagnosed....I will be 29 yrs old in 9 days! 3 babies...almost 7, 4 and 20 months. Happily married.
I found this site from Montel's site of which I visit when I want to be reassured I am NOT crazy! In my heart I believe I have MS but there has been no clinical proof fond. My Neuro believes it is probably MS. Instead I deal with attacks and no answers! Thanks!!

Posted: Mon Feb 02, 2004 9:04 am
by dawny
Hi I'm new here. I was dx in Sept. 2002. Have 3 wonderful children ages 12, 9, & 8. Married 14 wonderful years. I started on Avonex and have changed to Rebif. :lol:

Posted: Mon Feb 02, 2004 9:30 am
by Bonnie
What a surprise to see so many new intros on this thread.

mswp, fringedgention, annW, diehlbhg, Amy, september1968, crispy, aeroangel and dawny, nice to meet you all and I enjoyed reading all of your introductions.

BrendaH, thank you I did have a very nice trip. :)

well it is a mob scene, now

Posted: Tue Feb 03, 2004 6:59 am
by May
Garsh, a lot more people now than when I last peeked in the door. 315 registered, from all over the place, what a lot of stories and exerpiences to share. :D Dont be shy, belly on up to the board and meet-n-greet. Nice to see so many "faces".