95% Sure
Posted: Wed Aug 17, 2011 4:57 am
Hi - I'm new here and new to MS, well at least I thought I was I'm a 51 YO guy in NYC. Based on MRI's of my brain and spine, and her examination of me, my neuro is 95% sure I have MS. Both my head and back MRI's show both old and new lesions. Her exam confirmed, among other things, pretty pronounced ataxia. I also have rather annoying double vision. She attributes the double vision to the lesions in my head and my inability to walk a straight line to those on my cervical spine. I also tire very easily and the heat/sunlight combo is not my friend.
The not as new to MS as I thought relates to what I thought was an isolated incident 20 years ago. I lost topical sensation in my legs and lost all feeling in my feet. The docs couldn't figure out what the problem was and finally settled on a Guillan Barre variant. The symptoms went away and I never gave it another thought. 18 years later I had an itching sensation over my neck and shoulders that I could not make go away. No creams no amount of scratching, nothing would work. I also started walking like I had been over served at the local tap room. I would literally bounce off walls. I had had my hip replaced 8 months before and thought it was related to that, so I went to see the hip doc. He couldn't find anything and eventually the symptoms went away.
Fast forward to the beginning of July. My legs started to feel like they weighed 400 LBS apiece. I noticed I was catching toes and scraping heels when I walked. I have about a 3/4 mile walk to the subway in the morning and it was taking every bit of energy I had. After about 3 weeks of this the double vision kicked in. I went to my PCP who told me I needed to see a neuro. I saw her last Thursday. In addition to the earlier stuff, she is convinced that The episodes 20 and 2 years ago were MS and that is backed up by older, inactive lesions that showed up.
Anyway, that's my story. I have lots to learn and look forward everyone's insight.
Kyle
The not as new to MS as I thought relates to what I thought was an isolated incident 20 years ago. I lost topical sensation in my legs and lost all feeling in my feet. The docs couldn't figure out what the problem was and finally settled on a Guillan Barre variant. The symptoms went away and I never gave it another thought. 18 years later I had an itching sensation over my neck and shoulders that I could not make go away. No creams no amount of scratching, nothing would work. I also started walking like I had been over served at the local tap room. I would literally bounce off walls. I had had my hip replaced 8 months before and thought it was related to that, so I went to see the hip doc. He couldn't find anything and eventually the symptoms went away.
Fast forward to the beginning of July. My legs started to feel like they weighed 400 LBS apiece. I noticed I was catching toes and scraping heels when I walked. I have about a 3/4 mile walk to the subway in the morning and it was taking every bit of energy I had. After about 3 weeks of this the double vision kicked in. I went to my PCP who told me I needed to see a neuro. I saw her last Thursday. In addition to the earlier stuff, she is convinced that The episodes 20 and 2 years ago were MS and that is backed up by older, inactive lesions that showed up.
Anyway, that's my story. I have lots to learn and look forward everyone's insight.
Kyle