Hello Soon to be Friends
Posted: Thu Nov 03, 2011 12:47 pm
Well i hope we will be friends.
So I just found the site because I was wanting to be able to talk a little more about MS and I find it scares most people that don't live with it. I was told I had MS 5 or 6 years ago... I have never been that good with time. I am 32 now so I have been living with it for a while. I even think i was living with it for a while before i went to see the doctor. My first doc was not the one for me but my second one is great even though its been 2 years since i last saw her.
Back story, I woke up one day and noticed my face going numb. My mother tells me Aw its just a sinus problem. So i wait for a little bit and its not getting better. I go to the doctor and he doesn't see anything Sinus related but doesn't know why i would be numb. He finally breaks down and gives me some steroids and it clears right up. The week after the right side of my back and stomach go numb. That is when he sends me to a brain doctor. They do some scans and see some scars then they to a spinal tap and i think i had like 8 bands or 9 bands and that seemed to shock the doctor. She put me right away on rebif. This was the doc i didn't really like much.
Rebif was great but my lever doesn't like it. I get switched to copaxone and i get a new doctor which is a better personality fit to me. Over the next 3 or so years i have small attacks an arm would go numb or i would get dizzy spells (it seems my white blood cells love to chew on my cerebellum.) I might add i hate needles so i have stopped taking my meds again (i know its bad of me to get me on them last time my doc had me taking Xanax thats had bad i hate needles) I am starting to look at the new meds but i just worry about money. These last 3 years i have had two Son's and kids these days cost alot of money.
So in the last year my eye site has gone phoey and i wear glasses. I also get headaches all the time but the MS doc keeps telling me talk to the eye doctor and the eye doctor says wear the glasses and you will be fine... but i still get headaches.
The other part of the story is i am very dyslexic and ADD (sorry i know the story jumped around a little bit). But before i did anything else or start talking or asking questions i thought it would be better to introduce myself. So Hello I am Zak.
So I just found the site because I was wanting to be able to talk a little more about MS and I find it scares most people that don't live with it. I was told I had MS 5 or 6 years ago... I have never been that good with time. I am 32 now so I have been living with it for a while. I even think i was living with it for a while before i went to see the doctor. My first doc was not the one for me but my second one is great even though its been 2 years since i last saw her.
Back story, I woke up one day and noticed my face going numb. My mother tells me Aw its just a sinus problem. So i wait for a little bit and its not getting better. I go to the doctor and he doesn't see anything Sinus related but doesn't know why i would be numb. He finally breaks down and gives me some steroids and it clears right up. The week after the right side of my back and stomach go numb. That is when he sends me to a brain doctor. They do some scans and see some scars then they to a spinal tap and i think i had like 8 bands or 9 bands and that seemed to shock the doctor. She put me right away on rebif. This was the doc i didn't really like much.
Rebif was great but my lever doesn't like it. I get switched to copaxone and i get a new doctor which is a better personality fit to me. Over the next 3 or so years i have small attacks an arm would go numb or i would get dizzy spells (it seems my white blood cells love to chew on my cerebellum.) I might add i hate needles so i have stopped taking my meds again (i know its bad of me to get me on them last time my doc had me taking Xanax thats had bad i hate needles) I am starting to look at the new meds but i just worry about money. These last 3 years i have had two Son's and kids these days cost alot of money.
So in the last year my eye site has gone phoey and i wear glasses. I also get headaches all the time but the MS doc keeps telling me talk to the eye doctor and the eye doctor says wear the glasses and you will be fine... but i still get headaches.
The other part of the story is i am very dyslexic and ADD (sorry i know the story jumped around a little bit). But before i did anything else or start talking or asking questions i thought it would be better to introduce myself. So Hello I am Zak.