anutter Newb here - just have been diagnosed
Posted: Fri Jul 27, 2012 8:58 am
Hello everyone!
I have just been given the information, based upon brain/MRI this past Tues, that I have MS. Oh yea. A very strange sorta 'relief' at this point cause it explains SO Much about the last 15 years of silent and totally futile battle - and like so many others that I've been just reading about now for the last couple of days...wow. And i am definitely not the kinda person who has 'kept all of this in' over the years, but I might as well have, given the responses I have gotten, both from medicos and family/friends.
I'm now going through the 'doctor bureaucracy' just to get a neurologists scheduled to proceed with things. So past couple of days have been rather mindboggling (i.e. waiting and getting paranoid with initial internet info). But guess I now have a better excuse for being boggled at all. Yes I have very sick sense of humor, but it gets me through...
The reason this came up at all, was because last week I awoke with left arm totally useless, along with some slur in my speech, and it didn't fix itself, so went to Dr this Tues where he scheduled emerg MRI and got the results by suppertime. So it's been internet/R+D time ever since and I now have quite a bit of great info, giving me at least a good head-start (I think?!). Just impatiently waiting now to see if at all the referred group at neuro hospital - Froedtert - in Milwaukee - are hip to CCVSI which is sounding to me like the only way to begin this journey effectively and perhaps along with the LDN good news.
Anyone have any info here?
I have had so many historical episodes, that I'm now only beginning to piece together things that are making some sense to me now: like divorce from hell (yes, I apparently married Satan herself) who has succeeded in making me bankrupt, so a primary concern of mine now is the potential medical coverage of the 'newer/alternative' solutions which are very often murdered by the big, evil Pharmos. I have just realized that the divorce-and subsequent 5-years in court which is still going on, that a large part of it was due to her complete un-acknowledgement of my symptoms over the years, which I was, until now unable to explain to her. Well that's a done deal if ever there was one, so it's not like I'm bumming about it now. Its just that she has actually used my symptoms, to convince her lawyer and the judge (and anyone else who'd listen: friends family) that I'm a complete idiot. I can't even see my daughter on any regular basis - about 3-4 times a year. So I can totally feel for ANYONE, who has had their own version of this and having to live through it all.
BTW: I also have now about 8 years 'experience' with diabetes since being diagnosed (yes: why have only ONE life changing, debilitating disease?) so I have a pretty good handle on how messed the 'health-care' system is, yet am wholly behind alternative/holistic approaches while yet also realizing poss benefits of tried and true (traditional) medicine. Just very leary of these days. Even though I have now found the best possible definition of Diabetes: "A VERY large, multibillion dollar business", I do believe there are those within the structure who care and are good folks. Just hopefully not too well indoctrinated into the mind-numbing spectacle that is our current healthcare system here in the USA. Yet I must say probably better than many other places on this rock.
Sorry, I don't mean to be too dismal here upon my introduction, but I'm thinking this site, to some degree, is based upon and because of: the confusion of this 'system'. Which at it's best, is just plain indecipherable - and at it's worst: good folks die, or are on meds that will get them there quicker.
As I am primarily a musician and artist, my now absent left arm/hand has me freaking out. Not seeing much point to being around if I can't make stuff. I'm also an electronic engineer. Had to cancel this weeks trip due to above, but am trying to ascertain if I can even work now, thinking my arm is going to come back at some point...? No good answers yet from the 'professionals', but I guess I really need to give myself some time here to absorb things...typing, is now a challenge.
It is really nice to know this site exists! Thank you to all who make it what it is. I look forward to future communications and probably to the point of some wishing I'd just shut up.
Cheers and Best to all,
Rog
I have just been given the information, based upon brain/MRI this past Tues, that I have MS. Oh yea. A very strange sorta 'relief' at this point cause it explains SO Much about the last 15 years of silent and totally futile battle - and like so many others that I've been just reading about now for the last couple of days...wow. And i am definitely not the kinda person who has 'kept all of this in' over the years, but I might as well have, given the responses I have gotten, both from medicos and family/friends.
I'm now going through the 'doctor bureaucracy' just to get a neurologists scheduled to proceed with things. So past couple of days have been rather mindboggling (i.e. waiting and getting paranoid with initial internet info). But guess I now have a better excuse for being boggled at all. Yes I have very sick sense of humor, but it gets me through...
The reason this came up at all, was because last week I awoke with left arm totally useless, along with some slur in my speech, and it didn't fix itself, so went to Dr this Tues where he scheduled emerg MRI and got the results by suppertime. So it's been internet/R+D time ever since and I now have quite a bit of great info, giving me at least a good head-start (I think?!). Just impatiently waiting now to see if at all the referred group at neuro hospital - Froedtert - in Milwaukee - are hip to CCVSI which is sounding to me like the only way to begin this journey effectively and perhaps along with the LDN good news.
Anyone have any info here?
I have had so many historical episodes, that I'm now only beginning to piece together things that are making some sense to me now: like divorce from hell (yes, I apparently married Satan herself) who has succeeded in making me bankrupt, so a primary concern of mine now is the potential medical coverage of the 'newer/alternative' solutions which are very often murdered by the big, evil Pharmos. I have just realized that the divorce-and subsequent 5-years in court which is still going on, that a large part of it was due to her complete un-acknowledgement of my symptoms over the years, which I was, until now unable to explain to her. Well that's a done deal if ever there was one, so it's not like I'm bumming about it now. Its just that she has actually used my symptoms, to convince her lawyer and the judge (and anyone else who'd listen: friends family) that I'm a complete idiot. I can't even see my daughter on any regular basis - about 3-4 times a year. So I can totally feel for ANYONE, who has had their own version of this and having to live through it all.
BTW: I also have now about 8 years 'experience' with diabetes since being diagnosed (yes: why have only ONE life changing, debilitating disease?) so I have a pretty good handle on how messed the 'health-care' system is, yet am wholly behind alternative/holistic approaches while yet also realizing poss benefits of tried and true (traditional) medicine. Just very leary of these days. Even though I have now found the best possible definition of Diabetes: "A VERY large, multibillion dollar business", I do believe there are those within the structure who care and are good folks. Just hopefully not too well indoctrinated into the mind-numbing spectacle that is our current healthcare system here in the USA. Yet I must say probably better than many other places on this rock.
Sorry, I don't mean to be too dismal here upon my introduction, but I'm thinking this site, to some degree, is based upon and because of: the confusion of this 'system'. Which at it's best, is just plain indecipherable - and at it's worst: good folks die, or are on meds that will get them there quicker.
As I am primarily a musician and artist, my now absent left arm/hand has me freaking out. Not seeing much point to being around if I can't make stuff. I'm also an electronic engineer. Had to cancel this weeks trip due to above, but am trying to ascertain if I can even work now, thinking my arm is going to come back at some point...? No good answers yet from the 'professionals', but I guess I really need to give myself some time here to absorb things...typing, is now a challenge.
It is really nice to know this site exists! Thank you to all who make it what it is. I look forward to future communications and probably to the point of some wishing I'd just shut up.
Cheers and Best to all,
Rog