glad to have found this forum
Posted: Fri Dec 21, 2012 2:06 pm
Hi,
I'm Meagan. i was dx'd about 15 months ago. the first 14 months were hell but i'm getting to a place where i feel positive about myself and my future. i will always look back on that time as a very traumatic time in my life--more than just MS happened. but i got through it, i got through grad school in spite of it and now i'm ready to live life. i don't believe in the medications. i keep trying, but i just don't. i'm most interested in natural/dietary methods but in the interest of keeping things balanced would like to add in an oral medication soon. i have tried copaxone and failed miserably both times. i am currently flunking out of a vitamin D/copaxone study at UCSF secondary to my treatment noncompliance. BUT i feel GREAT! better than i have since diagnosis.
i still wear out much faster than my friends and at 32, my social life and ability to participate in things other than just working and coming home to rest is limited. very limited. but i'm doing the best i can and trying to keep myself goal-oriented and not quick to be self-depricating when i'm just not up for something. i have a great partner and she has been really supportive in spite of trying to wrap her head around all of this non sense too. it can't be easy.
plans for the future are tenuous. i try not to think too far ahead but instead to focus on the immediate future and try to do something meaningful each day with my time. i think that is the biggest thing i have gotten out of this diagnosis (besides something else to nerd out on with research) is that i am on borrowed time. there will likely come a time in my future where i will be forced to admit that i am not able to do something i really want to. when that time comes i want to meet it with no regrets!
i am coming here mostly to learn about new treatments and new approaches to the disease. i have very few symptoms at this point and the ones that i do have i can live with. so far, i have not had anything that resembles a relapse. i have 12+ lesions in my brain and spinal cord, and with the exception of my presenting symptom of diffuse lhermitte's i had no other major symptoms. it was all subclinical. i feel fortunate to have been diagnosed so quickly and that its "mild MS."
i think that's probably more than enough for an introduction...if you read this whole thing i apologize--i tend to be wordy!
I'm Meagan. i was dx'd about 15 months ago. the first 14 months were hell but i'm getting to a place where i feel positive about myself and my future. i will always look back on that time as a very traumatic time in my life--more than just MS happened. but i got through it, i got through grad school in spite of it and now i'm ready to live life. i don't believe in the medications. i keep trying, but i just don't. i'm most interested in natural/dietary methods but in the interest of keeping things balanced would like to add in an oral medication soon. i have tried copaxone and failed miserably both times. i am currently flunking out of a vitamin D/copaxone study at UCSF secondary to my treatment noncompliance. BUT i feel GREAT! better than i have since diagnosis.
i still wear out much faster than my friends and at 32, my social life and ability to participate in things other than just working and coming home to rest is limited. very limited. but i'm doing the best i can and trying to keep myself goal-oriented and not quick to be self-depricating when i'm just not up for something. i have a great partner and she has been really supportive in spite of trying to wrap her head around all of this non sense too. it can't be easy.
plans for the future are tenuous. i try not to think too far ahead but instead to focus on the immediate future and try to do something meaningful each day with my time. i think that is the biggest thing i have gotten out of this diagnosis (besides something else to nerd out on with research) is that i am on borrowed time. there will likely come a time in my future where i will be forced to admit that i am not able to do something i really want to. when that time comes i want to meet it with no regrets!
i am coming here mostly to learn about new treatments and new approaches to the disease. i have very few symptoms at this point and the ones that i do have i can live with. so far, i have not had anything that resembles a relapse. i have 12+ lesions in my brain and spinal cord, and with the exception of my presenting symptom of diffuse lhermitte's i had no other major symptoms. it was all subclinical. i feel fortunate to have been diagnosed so quickly and that its "mild MS."
i think that's probably more than enough for an introduction...if you read this whole thing i apologize--i tend to be wordy!
