perplexed by dr's
Posted: Sat Feb 16, 2013 1:09 am
Hi everyone this is my first post.
I have read a good deal on this site and others.
I have had a long hard go at this sudden change in everything and feel like an over washed shirt.
I turn to your experiences as a community.
After having a very sudden case of paralysis of the entire left side except torso I was told i had a sudden stroke and I would need to be transferred to the city to be tested and treated.
After ct scans, xray, etc etc... I was told there was no signs of stroke etc. but an mri showed an abnormality.
I'm shure we all know the road ahead wasnt easy and the red tape doesnt need to be typed up. However the prognos of stroke and such and such seem to have caused such a confusion / mess of my scenario that I have been bounced to n fro with stroke clinic mri etc but NOT ms clinics even when i was set up for them.
End result is this
After nearly 2 years I have finally seen an MS neuro at the MS clinic. This neuro entered the room stating to she "knows" the mixups that have happened causing me to be there a year later then i should have been. She took my list of symptoms, took a seconds glance at it, dropped it on the table and proceeded to ask a few questions and "test" a few things like responses, spastisity.
Then upped my 300mg, 3 time a day gabapentin to 900mg, 3 times daily and TTTTTTTTTTT, explained the interferon treatments and such (which i already knew about) handed me pamphlets that I already knew the info in and sent me to the nurse who really didnt do much more...
Before i add to this i want to emphasize the one second glance at my symptoms list.
When i pointed out my issue with balance / vertigo being present when waking up, tired, hungry, stressed, etc she told me to walk a line toes to heel i was fine in balance. Of course clearly not considering that i had been up for several hours, had been having very easy restful, stress free days for about a week, and was no wheres near tired......
So my issue is this...
How do i get these docs to hear out what im saying without breaking down infront of them (which effexor seems to elliminated due to inability to actually cry, etc)
Argggg it sounds retarded as i pre read my own post but it is what it is.
Hope some light can be shed here in form of advice and thanks before hand for and input you might have.
I have read a good deal on this site and others.
I have had a long hard go at this sudden change in everything and feel like an over washed shirt.
I turn to your experiences as a community.
After having a very sudden case of paralysis of the entire left side except torso I was told i had a sudden stroke and I would need to be transferred to the city to be tested and treated.
After ct scans, xray, etc etc... I was told there was no signs of stroke etc. but an mri showed an abnormality.
I'm shure we all know the road ahead wasnt easy and the red tape doesnt need to be typed up. However the prognos of stroke and such and such seem to have caused such a confusion / mess of my scenario that I have been bounced to n fro with stroke clinic mri etc but NOT ms clinics even when i was set up for them.
End result is this
After nearly 2 years I have finally seen an MS neuro at the MS clinic. This neuro entered the room stating to she "knows" the mixups that have happened causing me to be there a year later then i should have been. She took my list of symptoms, took a seconds glance at it, dropped it on the table and proceeded to ask a few questions and "test" a few things like responses, spastisity.
Then upped my 300mg, 3 time a day gabapentin to 900mg, 3 times daily and TTTTTTTTTTT, explained the interferon treatments and such (which i already knew about) handed me pamphlets that I already knew the info in and sent me to the nurse who really didnt do much more...
Before i add to this i want to emphasize the one second glance at my symptoms list.
When i pointed out my issue with balance / vertigo being present when waking up, tired, hungry, stressed, etc she told me to walk a line toes to heel i was fine in balance. Of course clearly not considering that i had been up for several hours, had been having very easy restful, stress free days for about a week, and was no wheres near tired......
So my issue is this...
How do i get these docs to hear out what im saying without breaking down infront of them (which effexor seems to elliminated due to inability to actually cry, etc)
Argggg it sounds retarded as i pre read my own post but it is what it is.
Hope some light can be shed here in form of advice and thanks before hand for and input you might have.