To Gilenya or not Gilenya
Posted: Mon Apr 01, 2013 5:22 pm
Hello,
I was diagnosed with MS 3 months ago after 4 episodes over 8ys, I have been told that it is not known if I have a benign form of MS or not and if or when my MS may progress. It has been suggested to me to start on Gilenya to slow or stop it from progressing any further. I am not sure that I want to do this as the episodes I have had have not left any lasting effect as yet although the last was worse than the others. Also as Gilenya is relatively new no one knows what the long term side effects of this drug could be. Do I start the treatment as a preventative or do I not and wait and see what happens? Obviously if I wait and it does get worse then I will be kicking myself on the other hand I don't really want to be on a drug for the rest of my life that I will never really know what or if it is doing anything!! HELP PLEASE.....
I was diagnosed with MS 3 months ago after 4 episodes over 8ys, I have been told that it is not known if I have a benign form of MS or not and if or when my MS may progress. It has been suggested to me to start on Gilenya to slow or stop it from progressing any further. I am not sure that I want to do this as the episodes I have had have not left any lasting effect as yet although the last was worse than the others. Also as Gilenya is relatively new no one knows what the long term side effects of this drug could be. Do I start the treatment as a preventative or do I not and wait and see what happens? Obviously if I wait and it does get worse then I will be kicking myself on the other hand I don't really want to be on a drug for the rest of my life that I will never really know what or if it is doing anything!! HELP PLEASE.....