This Is MS Multiple Sclerosis Knowledge & Support Community

Hi, I have ms for 16 yrs. The first 12 sort of iffy with just one lesion, but a big impact on my body. luckily this improved. now for the the last 4 yrs diagnosis with many. Have been given Rebif and inject with the 22mg as I can't take the 44mg too many side effects. I have a problem with injection site very sore, itchy, lumpy, after 4 years very very fed up with it, on a bit of a downer I am afraid. Have been thinking of stopping and giving myself a holiday from the injections. Will I get some horrible withdrawel problems?

hi t, welcome to the forum sorry i can't help with your meds question but you will find plenty of support here. again, welcome!

titchie wrote:Have been thinking of stopping and giving myself a holiday from the injections. Will I get some horrible withdrawel problems?

I was on Avonex for 10 years and stopped since my MS was progressing anyway. I did not experience any sudden rebound effect, but I have continued progressing. Everyone's course might be different though.

NHE

titchie wrote:Have been given Rebif and inject with the 22mg as I can't take the 44mg too many side effects. I have a problem with injection site very sore, itchy, lumpy, after 4 years very very fed up with it, on a bit of a downer I am afraid. Have been thinking of stopping and giving myself a holiday from the injections. Will I get some horrible withdrawel problems?

Have your considered switching to Avonex? Since it's an intramuscular injection, it doesn't have the injection site reactions that Rebif and Betaseron have. The worst that I had in 10 years was a nickel sized bruise that cleared up in about a day.

thank you, will look into Avonex, my medical support is rubbish, I have said how fed up I am no answers really just get on with it. So feeling a bit stranded.

lots you can do with nutrition, if interested i can help