MS at 13 but symptom free for four years
Posted: Thu Apr 18, 2013 2:08 pm
Hello everyone,
I've just joined as I was recommended by a man I met today at the place where I get treatment for my MS.
I don't really know where to start because I've now had MS for 10 years and I've gone on a LONG journey of trying to find out how to get better. I got my first proper symptoms when I woke up on Valentine's day 2004 at the age of 13 with my entire right leg completely numb. After a lot of hassling the doctors for help (they kept telling me to just go home and see if it got better/took my parents aside and suggested perhaps I was making things up to avoid going to school) we had to go private to be taken seriously(by this time my whole body had gone numb) and fortunately I was immediately sent to hospital for tests. Everything came back positive for "MS" from the brain scans to the lumbar puncture but they didn't want to make a proper diagnosis because I was so young so basically after 5 years, at the age of eighteen they finally just diagnosed me... very non-chalantly, basically saying "well it looks like you have MS then" which came as a shockto me considering I'd been thinking it wasn't really for five years even though I was having yearly attacks. They offered me beta interferon injections but I decided to go on my own journey and try out other things.
That's the basic gist of it. My main symptoms were numbness, weakness, pain and mental confusion "brain fog". I sometimes had difficulty swallowing and depression hit very quickly. I was sleeping a lot and generally feeling awful.
Anyway I don't want to bore everyone with all the details (though I'm happy to answer any questions at all) and what I really want to bring awareness to is the treatment that I started having when I was 19. I'd spent a while trying out the "MS diet" and supplements etc but didn't see much improvement. Funnily enough, I found it through Facebook because someone was advertising a group concerning ME/CFS and I was so desperate at the time I clicked on it. The person on this group was making radical claims that he was basically "saved" by a dentist in Putney. I wrote on the group asking if they'd had any success with MS and the dentist whose name is Mohammed Amir replied saying he'd treated one patient with MS very successfully so I decided to go and see him. The second I walked through the door, he told me my jaw was out of place. I was shocked (and a little offended haha) and then he showed me where my jaw really should be. When I put my jaw in the correct place (forward and to the left, for me) and he tested my strength I was MUCH stronger and my breathing was much easier. He also explained that my atlas vertebrae was out of place causing even more imbalance (I also have scoliosis) He explained that in our western culture we're not eating the right foods for our jaws to form properly, we end up with imbalanced bodies and not even enough room in our mouths for our wisdom teeth. In my case, my jaw was too far back causing tension in the back of my neck and hindering the blood flow etc and everything seemed out of balance- my spine and my hips especially.
I was really interested but my parents thought he was a con man like many people who take advantage of the sick because they are so vulnerable and desperate to get better.
I ignored my parents and boyfriend (who had just started studying medicine at UCL so it was completely against his scientific beliefs) and luckily had some money saved up to start the treatment. This was in May 2009. Treatment consisted of wearing different dental appliances, wearing a cricket helmet every day with elastic bands attached to said appliances to slowly bring my jaw forward to the correct place so my body could be in balance. I even had to wear train tracks for a year and a half - it was ALL worth it.
He honestly saved my life (even if MS didn't kill me, I didn't feel like I was living at the time consumed with depression at watching all my friends going to university and walking with ease!) and since me has helped many others with MS and other diseases too. In those days, I was finding it hard to walk... my muscles were wasted, I was very skinny and weak. Now I'm healthy and robust and I've just been on a trip to the Amazon which I never ever thought I'd be able to do. I consider myself extremely lucky, it's like my naivety actually led me to something amazing. Whenever I tell people it was all to do with my jaw, they find it very hard to believe. Even I find it hard to believe but something that helped me have even more conviction is that in September last year, I had a bad fall down the stairs at a tube station and basically fell right on my face. My jaw was incredibly swollen and I started noticing my legs becoming numb again. At first I was heartbroken thinking it was the MS had come back and it had all been just a phase of remission but then I put two and two together and went back to Amir and he confirmed my jaw had been knocked out again and we started treatment again and here I am again, absolutely fine and strong.
Obviously I understand this treatment is controversial but I keep feeling nudged to share this information with people because it has helped me so much. I was so ill for 6 years and just couldn't think of anything else. Whenever I hear about people being diagnosed I feel so sad because it was so hard and I want to tell everyone about this treatment that could help them but it gets ridiculed quite quickly because it's not the medical "norm".
Anyway I'm happy to answer any questions or even meet up with anyone if they're in the London area. I want to spread the message but I guess I'm also afraid of being ridiculed or even targeted by people who are so against "alternatives". Amir gets a lot of flack but he spends his time researching and trying to help people.
I have two articles to share, one is written by a Bella Freud who Amir helped with migraines but she also mentions MS patients and the other is by the first lady Amir ever treated with MS.
http://www.standard.co.uk/lifestyle/hea ... 64060.html
http://www.positivehealth.com/article/c ... -sclerosis
I hope whoever reads this, even if you don't believe this can work, you can see that there is hope out there!
Camille
I've just joined as I was recommended by a man I met today at the place where I get treatment for my MS.
I don't really know where to start because I've now had MS for 10 years and I've gone on a LONG journey of trying to find out how to get better. I got my first proper symptoms when I woke up on Valentine's day 2004 at the age of 13 with my entire right leg completely numb. After a lot of hassling the doctors for help (they kept telling me to just go home and see if it got better/took my parents aside and suggested perhaps I was making things up to avoid going to school) we had to go private to be taken seriously(by this time my whole body had gone numb) and fortunately I was immediately sent to hospital for tests. Everything came back positive for "MS" from the brain scans to the lumbar puncture but they didn't want to make a proper diagnosis because I was so young so basically after 5 years, at the age of eighteen they finally just diagnosed me... very non-chalantly, basically saying "well it looks like you have MS then" which came as a shockto me considering I'd been thinking it wasn't really for five years even though I was having yearly attacks. They offered me beta interferon injections but I decided to go on my own journey and try out other things.
That's the basic gist of it. My main symptoms were numbness, weakness, pain and mental confusion "brain fog". I sometimes had difficulty swallowing and depression hit very quickly. I was sleeping a lot and generally feeling awful.
Anyway I don't want to bore everyone with all the details (though I'm happy to answer any questions at all) and what I really want to bring awareness to is the treatment that I started having when I was 19. I'd spent a while trying out the "MS diet" and supplements etc but didn't see much improvement. Funnily enough, I found it through Facebook because someone was advertising a group concerning ME/CFS and I was so desperate at the time I clicked on it. The person on this group was making radical claims that he was basically "saved" by a dentist in Putney. I wrote on the group asking if they'd had any success with MS and the dentist whose name is Mohammed Amir replied saying he'd treated one patient with MS very successfully so I decided to go and see him. The second I walked through the door, he told me my jaw was out of place. I was shocked (and a little offended haha) and then he showed me where my jaw really should be. When I put my jaw in the correct place (forward and to the left, for me) and he tested my strength I was MUCH stronger and my breathing was much easier. He also explained that my atlas vertebrae was out of place causing even more imbalance (I also have scoliosis) He explained that in our western culture we're not eating the right foods for our jaws to form properly, we end up with imbalanced bodies and not even enough room in our mouths for our wisdom teeth. In my case, my jaw was too far back causing tension in the back of my neck and hindering the blood flow etc and everything seemed out of balance- my spine and my hips especially.
I was really interested but my parents thought he was a con man like many people who take advantage of the sick because they are so vulnerable and desperate to get better.
I ignored my parents and boyfriend (who had just started studying medicine at UCL so it was completely against his scientific beliefs) and luckily had some money saved up to start the treatment. This was in May 2009. Treatment consisted of wearing different dental appliances, wearing a cricket helmet every day with elastic bands attached to said appliances to slowly bring my jaw forward to the correct place so my body could be in balance. I even had to wear train tracks for a year and a half - it was ALL worth it.
He honestly saved my life (even if MS didn't kill me, I didn't feel like I was living at the time consumed with depression at watching all my friends going to university and walking with ease!) and since me has helped many others with MS and other diseases too. In those days, I was finding it hard to walk... my muscles were wasted, I was very skinny and weak. Now I'm healthy and robust and I've just been on a trip to the Amazon which I never ever thought I'd be able to do. I consider myself extremely lucky, it's like my naivety actually led me to something amazing. Whenever I tell people it was all to do with my jaw, they find it very hard to believe. Even I find it hard to believe but something that helped me have even more conviction is that in September last year, I had a bad fall down the stairs at a tube station and basically fell right on my face. My jaw was incredibly swollen and I started noticing my legs becoming numb again. At first I was heartbroken thinking it was the MS had come back and it had all been just a phase of remission but then I put two and two together and went back to Amir and he confirmed my jaw had been knocked out again and we started treatment again and here I am again, absolutely fine and strong.
Obviously I understand this treatment is controversial but I keep feeling nudged to share this information with people because it has helped me so much. I was so ill for 6 years and just couldn't think of anything else. Whenever I hear about people being diagnosed I feel so sad because it was so hard and I want to tell everyone about this treatment that could help them but it gets ridiculed quite quickly because it's not the medical "norm".
Anyway I'm happy to answer any questions or even meet up with anyone if they're in the London area. I want to spread the message but I guess I'm also afraid of being ridiculed or even targeted by people who are so against "alternatives". Amir gets a lot of flack but he spends his time researching and trying to help people.
I have two articles to share, one is written by a Bella Freud who Amir helped with migraines but she also mentions MS patients and the other is by the first lady Amir ever treated with MS.
http://www.standard.co.uk/lifestyle/hea ... 64060.html
http://www.positivehealth.com/article/c ... -sclerosis
I hope whoever reads this, even if you don't believe this can work, you can see that there is hope out there!
Camille