waiting for definitive diagnosis and need feedback.
Posted: Wed Jul 17, 2013 10:18 am
hi all,
I am waiting diagnosis. 2 doctors have suspected ms but am in the process of getting tested. I have been searching for answers for 12 years.
I went to my PCP for years, complaining of "episodes", the term I coined. I just felt horrible. during these times I could not function. extreme fatigue, "brain paralysis" severe arms and neck pain. clenched fists while sleeping. waking up sore. Then the episode would pass and I could function again.
these cam about twice a year or more, lasting weeks then months.
I now have more physical symptoms then I can list. pins and needles in my feet, (no diabetes) twitching fingers and tremors on my right arm.
the most uncomfortable is a tightening of my neck and esophagus, fluttering in my chest, pain in my throat and a burning feeling under my breast bone. not heartburn.
when these symptoms happen I et a strange buzzing tingling in my brain, head. feels like a electrical storm in there.
then we have the neurological symptoms that scare me most. I can converse with people, I sound normal. My analytical brain works.....but I have severe deficits, like not being able to gauge amounts, do simple math, read, understand a television program. put groceries in the wrong cupboards. not feeling efficient.
I used to be.
could I have had a stroke?? TIA's??? or does this fit with MS?
I am a fiftiesh woman, who has had hyperactive bladder since my late 20's. still do. but as all these symptoms, they wax and wane, come and go.
I am not fond of doctors, not a hypochondriact,. My PCP who took over this practice knows me for 5 months only and thinks I have symptoms of dissosiative disorder. never had any mental problems before.
But he agreed to refer me to a neurologist.
any feedback would be appreciated.
peace
I am waiting diagnosis. 2 doctors have suspected ms but am in the process of getting tested. I have been searching for answers for 12 years.
I went to my PCP for years, complaining of "episodes", the term I coined. I just felt horrible. during these times I could not function. extreme fatigue, "brain paralysis" severe arms and neck pain. clenched fists while sleeping. waking up sore. Then the episode would pass and I could function again.
these cam about twice a year or more, lasting weeks then months.
I now have more physical symptoms then I can list. pins and needles in my feet, (no diabetes) twitching fingers and tremors on my right arm.
the most uncomfortable is a tightening of my neck and esophagus, fluttering in my chest, pain in my throat and a burning feeling under my breast bone. not heartburn.
when these symptoms happen I et a strange buzzing tingling in my brain, head. feels like a electrical storm in there.
then we have the neurological symptoms that scare me most. I can converse with people, I sound normal. My analytical brain works.....but I have severe deficits, like not being able to gauge amounts, do simple math, read, understand a television program. put groceries in the wrong cupboards. not feeling efficient.
I used to be.
could I have had a stroke?? TIA's??? or does this fit with MS?
I am a fiftiesh woman, who has had hyperactive bladder since my late 20's. still do. but as all these symptoms, they wax and wane, come and go.
I am not fond of doctors, not a hypochondriact,. My PCP who took over this practice knows me for 5 months only and thinks I have symptoms of dissosiative disorder. never had any mental problems before.
But he agreed to refer me to a neurologist.
any feedback would be appreciated.
peace