Here it goes/Hello
Posted: Fri Nov 15, 2013 10:51 am
Hey guys/gals,
My name is Sean, and although I have yet to be 100% diagnosed with ms, my doctor and neurologist are painting a very dintinct picture of its possibility. I have been going crazy in my mind for the last 8 years of my life with experience a range of symtoms that could easily fit in a number of neurological disorders. I guess I just figured that even at the very least writing all of this down can ease some of my anxiety and depression about it. I'm sorry that you guys probably get this a lot from people looking for answers and I'm not ignorant in the fact that it probably irritates those who have been clinically diagnosed. However, I'm sure you can understand that not knowing it almost worse than knowing. Anyway here it goes.
My situation is a bit more complex because I had a life threatening ATV accident when I was 15, of which I had adominal surgery to stop hermoraging and broke my back at L2 and L4. After being fully healed I became active and, after gaining back some weight began weight training. 3 months into a dedicated workout regimen I felt I was in the best shape of my life.... until, after falling extremely ill with a virus of some sort, I started experiencing tingles and itching sensations while being active, along with fatigue, and weakness. Nothing felt the same. I also started experiencing my arms going to sleep easily while I slept, often waking up in the middle of the night with one or both of them unable to move. I then started experiencing Burning pain and stiffness in my forearms and my triceps that almost felt like battery acid on my muscles at times. Through this I continued to exercise with my GP telling me it could be growing pains.I also had this pain in my hamstrings behind the knee accompanied by atrophy. My limb muscles would ache, crack, and snap with what I could only describe as a stiff, weak feeling. As this progressed, so did the atrophy. Undeniable atrophy that I could feel and see even when my parents and GP said they didn't see anything. I also have periodically woken up in a state of vertigo, spinning uncontrollably.
In trying to get to the bottom of this I've had my thyroid/B12/iron checked. Numerous blood tests, I had a EMG about 4 years ago and it was inconclusive. All seem to be normal except I am Anemic, although no indication why. I also developed suddenly a racing heart rate and panic/anxiety symptoms pretty much out of the blue.
Fast forward to present time. I started having electric pain shooting down my left leg. Pressure, spasms in my legs and triceps with tingling sensations in all 4 limbs at times. My right forearm and hand feels weak and brittle. but atrophy seems to relatively the same on both sides. My doc gave me lyrica to help with the pain, It seems to be working decently as these are the worst symptoms Ive had and it seems to be progressing in a obvious fashion. All of these symptoms come and go, but are undeniably getting worse. My eyes also periodically water uncontrollably at night. I'm seeing a new neurologist now and he has ordered another EMG test/ some other tests. So I guess for now I wait...
So thats it in a nutshell, I apologize for the novel, I just felt like I needed to get this down, somewhere, anywhere. Any comments and Insight will be appreciated. Thanks in advance.
Sean
My name is Sean, and although I have yet to be 100% diagnosed with ms, my doctor and neurologist are painting a very dintinct picture of its possibility. I have been going crazy in my mind for the last 8 years of my life with experience a range of symtoms that could easily fit in a number of neurological disorders. I guess I just figured that even at the very least writing all of this down can ease some of my anxiety and depression about it. I'm sorry that you guys probably get this a lot from people looking for answers and I'm not ignorant in the fact that it probably irritates those who have been clinically diagnosed. However, I'm sure you can understand that not knowing it almost worse than knowing. Anyway here it goes.
My situation is a bit more complex because I had a life threatening ATV accident when I was 15, of which I had adominal surgery to stop hermoraging and broke my back at L2 and L4. After being fully healed I became active and, after gaining back some weight began weight training. 3 months into a dedicated workout regimen I felt I was in the best shape of my life.... until, after falling extremely ill with a virus of some sort, I started experiencing tingles and itching sensations while being active, along with fatigue, and weakness. Nothing felt the same. I also started experiencing my arms going to sleep easily while I slept, often waking up in the middle of the night with one or both of them unable to move. I then started experiencing Burning pain and stiffness in my forearms and my triceps that almost felt like battery acid on my muscles at times. Through this I continued to exercise with my GP telling me it could be growing pains.I also had this pain in my hamstrings behind the knee accompanied by atrophy. My limb muscles would ache, crack, and snap with what I could only describe as a stiff, weak feeling. As this progressed, so did the atrophy. Undeniable atrophy that I could feel and see even when my parents and GP said they didn't see anything. I also have periodically woken up in a state of vertigo, spinning uncontrollably.
In trying to get to the bottom of this I've had my thyroid/B12/iron checked. Numerous blood tests, I had a EMG about 4 years ago and it was inconclusive. All seem to be normal except I am Anemic, although no indication why. I also developed suddenly a racing heart rate and panic/anxiety symptoms pretty much out of the blue.
Fast forward to present time. I started having electric pain shooting down my left leg. Pressure, spasms in my legs and triceps with tingling sensations in all 4 limbs at times. My right forearm and hand feels weak and brittle. but atrophy seems to relatively the same on both sides. My doc gave me lyrica to help with the pain, It seems to be working decently as these are the worst symptoms Ive had and it seems to be progressing in a obvious fashion. All of these symptoms come and go, but are undeniably getting worse. My eyes also periodically water uncontrollably at night. I'm seeing a new neurologist now and he has ordered another EMG test/ some other tests. So I guess for now I wait...
So thats it in a nutshell, I apologize for the novel, I just felt like I needed to get this down, somewhere, anywhere. Any comments and Insight will be appreciated. Thanks in advance.
Sean