confused and frustrated! Any THoughts?
Posted: Sat Jun 13, 2015 9:31 am
Hello
I am new to this board but have been following for a while. I am in that horrible undiagnosed state and trying to decipher which if any of the auto immune disorders I may have.
Many years ago after my daughter was born I was diagnosed with Graves disease. After several attempts to manage it with thyroid PTU and such it was recommended to have it killed by means of radioactive iodine. I had to repeat this process two times before it worked. Now I am on synthyroid and my thyroid is on the small side.
My thyroid was managed until Oct of 2014. That is where my story begins. I underwent surgery for a lumpectomy and was supposed to be off for 1 week. AS far as the surgery site I felt fine , but I was weak and shaky in the hips, I was having headaches and extremely tired. AS time went on I started having join pain in my hands, feet, neck and back. AS time passes. the pain has progressed, the fatigue is really bad (up at 5:15, work at 7:00-3:30, nap 4:30-6:30 bed by 9:00) and now I get off and on pain in shoulders, knees, elbows. I have word finding difficulties, I get confused and I have difficulty reading. I also have a tendency to trip.
The newest symptoms are tingling in my left foot... 3 toes and into the ball of my foot, I have had a vibration on my hip( I thought it was my cell phone), feeling wet on my thigh when in fact there was nothing, my face feels tingly, my lower back gets sharp shooting pains kind of like it goes down my sciatica, there is a really sensitive spot on my back that hurts when touched, my ankles and hands swell all the time and I occasionally still get headaches.
I am currently on Cymbalta, 5 mg of time released preg and something for the pain. I am seeing a rheumy and a neuro both are stumped. I present with many unspecified symptoms bot all my tests are good. My CRP and SED rates are elevated and I have a positive ANA. I did have an MRI which showed 8 lesions which neuro says it is in the areas of MS, but she says I don't present like a MS patient.
I am so confused and frustrated. These are everything they have thrown at me but nothing says YES THIS IS IT... HVPB19, lupus, rheumatoid arthritis and MS.
Thanks for letting me vent
I am new to this board but have been following for a while. I am in that horrible undiagnosed state and trying to decipher which if any of the auto immune disorders I may have.
Many years ago after my daughter was born I was diagnosed with Graves disease. After several attempts to manage it with thyroid PTU and such it was recommended to have it killed by means of radioactive iodine. I had to repeat this process two times before it worked. Now I am on synthyroid and my thyroid is on the small side.
My thyroid was managed until Oct of 2014. That is where my story begins. I underwent surgery for a lumpectomy and was supposed to be off for 1 week. AS far as the surgery site I felt fine , but I was weak and shaky in the hips, I was having headaches and extremely tired. AS time went on I started having join pain in my hands, feet, neck and back. AS time passes. the pain has progressed, the fatigue is really bad (up at 5:15, work at 7:00-3:30, nap 4:30-6:30 bed by 9:00) and now I get off and on pain in shoulders, knees, elbows. I have word finding difficulties, I get confused and I have difficulty reading. I also have a tendency to trip.
The newest symptoms are tingling in my left foot... 3 toes and into the ball of my foot, I have had a vibration on my hip( I thought it was my cell phone), feeling wet on my thigh when in fact there was nothing, my face feels tingly, my lower back gets sharp shooting pains kind of like it goes down my sciatica, there is a really sensitive spot on my back that hurts when touched, my ankles and hands swell all the time and I occasionally still get headaches.
I am currently on Cymbalta, 5 mg of time released preg and something for the pain. I am seeing a rheumy and a neuro both are stumped. I present with many unspecified symptoms bot all my tests are good. My CRP and SED rates are elevated and I have a positive ANA. I did have an MRI which showed 8 lesions which neuro says it is in the areas of MS, but she says I don't present like a MS patient.
I am so confused and frustrated. These are everything they have thrown at me but nothing says YES THIS IS IT... HVPB19, lupus, rheumatoid arthritis and MS.
Thanks for letting me vent