Hi * !
Posted: Fri Oct 13, 2006 10:11 am
After browsing for almost a year now, I thought it was time to join.
I'm a male 36 from The Netherlands...
First I want to thank all involved in ThisIsMS. This site stands out with head and shoulders above the rest. It's really informative and a decent MS-library.
I've been diagnosed with RRMS after a Nuritis Optica. That's now 4 years ago. I had some symptoms before but never realized it was MS. I'm pretty much convinced I have MS since the age of 12. I was always terribly tired and I sometimes, as a child, had some kind of mini-tremors in my left leg. The initial RMI scan showed 4 laesies and a clean spine. Now I have at least 6-7 visible leasies and 2 (one as big as your thumb) in my spine.
After the diagnosis I had roughly one major attack per year. Even now I still have some residue left from the last attack wich was 3 months ago.
My main symptoms where (are): Both hands numb and unable to use them; same numbness (you all know what I mean) on my arms, chest, both legs and belly. Sometimes I wonder is there a spot left that _is_ 'normal'... Behind my ears and my chin I have the pain/itch combination... really awefull.. I've also had vision problems like the whole world continiously spinning in circles... Due to the big leasie in my spine I have a 'belt' arround my body on the same hight as where the big laesie is. My EDSS varies between 2.0 and 6.5 depending on being in a relapse or remitting period.
My main treatments so far have been a 5 day solumedrol IV after each attack. I'm planning to enroll in the FTY720 Phase III study. I use 1000ug B12 vitamin supplement per day. I also use extra calcium after a solumedrol treatment.
I've always seen my MS as a study object for instance I now really know how the hands work. Drawings arn't the same as expieriencing it (the hard way). I've read enormous amounts of MS-related papers and I'm trying to distill a theory of what MS is... so far I have only more questions then answers I really would like to do a survey about environmental influences among fellow MS sufferers. Questions like "Did you ever had an electrical shock" etc... Maybe someone already did this but I could not find it on the web...
That's all for now.
I'm a male 36 from The Netherlands...
First I want to thank all involved in ThisIsMS. This site stands out with head and shoulders above the rest. It's really informative and a decent MS-library.
I've been diagnosed with RRMS after a Nuritis Optica. That's now 4 years ago. I had some symptoms before but never realized it was MS. I'm pretty much convinced I have MS since the age of 12. I was always terribly tired and I sometimes, as a child, had some kind of mini-tremors in my left leg. The initial RMI scan showed 4 laesies and a clean spine. Now I have at least 6-7 visible leasies and 2 (one as big as your thumb) in my spine.
After the diagnosis I had roughly one major attack per year. Even now I still have some residue left from the last attack wich was 3 months ago.
My main symptoms where (are): Both hands numb and unable to use them; same numbness (you all know what I mean) on my arms, chest, both legs and belly. Sometimes I wonder is there a spot left that _is_ 'normal'... Behind my ears and my chin I have the pain/itch combination... really awefull.. I've also had vision problems like the whole world continiously spinning in circles... Due to the big leasie in my spine I have a 'belt' arround my body on the same hight as where the big laesie is. My EDSS varies between 2.0 and 6.5 depending on being in a relapse or remitting period.
My main treatments so far have been a 5 day solumedrol IV after each attack. I'm planning to enroll in the FTY720 Phase III study. I use 1000ug B12 vitamin supplement per day. I also use extra calcium after a solumedrol treatment.
I've always seen my MS as a study object for instance I now really know how the hands work. Drawings arn't the same as expieriencing it (the hard way). I've read enormous amounts of MS-related papers and I'm trying to distill a theory of what MS is... so far I have only more questions then answers I really would like to do a survey about environmental influences among fellow MS sufferers. Questions like "Did you ever had an electrical shock" etc... Maybe someone already did this but I could not find it on the web...
That's all for now.