Hello!!
Posted: Thu May 31, 2007 2:11 pm
Hiya!
In March I got the word that all this craziness I was experiencing was indeed MS. I had several "numb spots" on my hands, feet & legs. I was a bit unsteady, but nothing too dramatic. I saw the neurologist who confirmed what I'd figured out via the internet.
He said that... yup, it was MS, here's 4 BIG binders. Each outlines a different medication. Read through them and pick one. I lean toward the once a week or three times a week injections.
THAT was the extent of our conversation. It was also the last time I saw him. His secretary called several days later to see if I's chosen a med.
The Rebif showed up two weeks later and the nurse came a few days after that. She's called to check in once or twice. That's been about it.
Oh... 6 weeks ago my insurance changed and that neuro doesn't take the new insurance. So now to neuro #2 on June 21. however, I DID get myself into the MS center @ Johns Hopkins, as well. That appt is June 25.
In the meantime, I feel as though I've been thru a blender. I'm VERY unsteady, tired all the time, my legs feel as though I have 5 lb weights on my ankles while walking through 4 feet of water. Yuck!! And the PAIN... my feet feel like I'm wearing shoes two sizes to small!! It's especially bad at night. Most of this began AFTER the rebif. Did that make it worse? If anyone can tell me what, if any of it, is typical, I'd be forever grateful!!
Oh well... hopefully neuro #2 and the folks at Hopkins will shed some light...
Anyway, it's a pleasure to meet all of you and I apologize for the whining..
remember to smile!!!
Beth
In March I got the word that all this craziness I was experiencing was indeed MS. I had several "numb spots" on my hands, feet & legs. I was a bit unsteady, but nothing too dramatic. I saw the neurologist who confirmed what I'd figured out via the internet.
He said that... yup, it was MS, here's 4 BIG binders. Each outlines a different medication. Read through them and pick one. I lean toward the once a week or three times a week injections.
THAT was the extent of our conversation. It was also the last time I saw him. His secretary called several days later to see if I's chosen a med.
The Rebif showed up two weeks later and the nurse came a few days after that. She's called to check in once or twice. That's been about it.
Oh... 6 weeks ago my insurance changed and that neuro doesn't take the new insurance. So now to neuro #2 on June 21. however, I DID get myself into the MS center @ Johns Hopkins, as well. That appt is June 25.
In the meantime, I feel as though I've been thru a blender. I'm VERY unsteady, tired all the time, my legs feel as though I have 5 lb weights on my ankles while walking through 4 feet of water. Yuck!! And the PAIN... my feet feel like I'm wearing shoes two sizes to small!! It's especially bad at night. Most of this began AFTER the rebif. Did that make it worse? If anyone can tell me what, if any of it, is typical, I'd be forever grateful!!
Oh well... hopefully neuro #2 and the folks at Hopkins will shed some light...
Anyway, it's a pleasure to meet all of you and I apologize for the whining..
remember to smile!!!
Beth