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Posted: Wed Oct 31, 2007 5:11 am
by Lyon
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Posted: Wed Oct 31, 2007 6:29 am
by REDHAIRANDTEMPER
revoke my ms sure you can have that just dont revoke my membership to the site....lol....... :D


chris

Posted: Wed Oct 31, 2007 7:21 am
by Lyon
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Posted: Wed Oct 31, 2007 7:52 am
by REDHAIRANDTEMPER
oh so i dont have to worry about you....lol....j/k so its bromley i have to be sweet and nice to..okay...hehehehe

chris

Posted: Wed Oct 31, 2007 8:14 am
by Lyon
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Posted: Wed Oct 31, 2007 8:41 am
by REDHAIRANDTEMPER
oh for chocolates well dang i could handle those....well ya know we are all a little strange so its nothing to hold against him ...lol

chris

Posted: Wed Oct 31, 2007 1:14 pm
by leis8
Have you talked to your doctor about the constant headaches? Did the headaches only start when you started taking Betaseron?
Bob[/quote]

I have had the headaches before I was diagnosed but at least before I started the injections I would have relief for a couple of days, now they are always around but usually get worse after the injections. I will ask the neurologist when I go back for my 6 week review. My GP is good but seems a little bit out of his depth with the whole MS deal.

Posted: Wed Oct 31, 2007 1:21 pm
by Lyon
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Posted: Wed Oct 31, 2007 1:33 pm
by leis8
My Mum used to get migranes and she would be in bed for a day or two, these headaches aren't that bad they are just constant and at times get quite painful but not as disabling as what my Mum went through.

Posted: Wed Oct 31, 2007 2:17 pm
by Lyon
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Posted: Wed Oct 31, 2007 3:08 pm
by leis8
I have noticed that if I take a couple of ibuprofen at the first hint of a headache, it never materializes. Have you tried that?

Bob[/quote]

I take Nurofen before my shot and a while later, however I think all is fine and then the headache appears. I am still at work but am feeling pretty ordinary after last nights shot. Only a few people at work know what is going on with me, I don't want to tell everyone. I am a bit afraid that a few people will think that as it is a brain problem that I will lose my marbles, and anything I do or say will be under closer scrutiny. Maybe that is just my own paranoia.

Posted: Wed Oct 31, 2007 3:50 pm
by Lyon
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Posted: Thu Nov 01, 2007 6:21 am
by TwistedHelix
Hello leis8,
Welcome to the site. The issue of headaches has cropped up before but, as Bob said, although it certainly looks as if there might be a link nothing conclusive has been proved just yet. If there is a connection I suspect it may be something at the vascular level.
Have you tried any other over the counter pain relief medication? Personally, absolutely nothing works for me except for co-codamol, (paracetamol and codeine), so maybe trying some different formulations might help – although always in consultation with your doctor in case it interacts with your prescription medication.
Headaches are listed among the side effects of Betaseron, and count as one of the " flu like symptoms complex" listed on the prescribing information, (which can be found on this link http://berlex.bayerhealthcare.com/html/ ... ron_PI.pdf).


Deciding whether to tell people about your diagnosis is entirely a personal choice: sometimes it feels good to be able to fight against other people's ignorance and spread a little bit of knowledge; other times you just feel too damn tired to bother explaining for the 100th time.