hello and thanks for all the info and support
Posted: Thu Jan 24, 2008 3:16 pm
hi. I have been visiting (lurking, researching, exploring) this site since last summer in support of a v. dear friend who finds it all too much to absorb, think about, handle on her own. You have a fantastic site and group of people here and the stories and information you share has been incredibly helpful to both my friend and myself.
Right now I am researching what some options are as her RRMS shifts into SPMS. She has been on Rebiff for a number of years, baclofin (sp?) and a few supplements (vit d) but not much else. Her neurologist is going to take her off the Rebiff and I/she/we are overwhelmed by all the things that people seem to be into -- there doesn't seem to be a consensus on the route to take for SPMS. Waiting to hear the neuro's specific plans next week, until then researching as much as possible in order to be prepared.
I wanted to take a moment in the middle of all this reading to say hello and to say thank you.
wg
Right now I am researching what some options are as her RRMS shifts into SPMS. She has been on Rebiff for a number of years, baclofin (sp?) and a few supplements (vit d) but not much else. Her neurologist is going to take her off the Rebiff and I/she/we are overwhelmed by all the things that people seem to be into -- there doesn't seem to be a consensus on the route to take for SPMS. Waiting to hear the neuro's specific plans next week, until then researching as much as possible in order to be prepared.
I wanted to take a moment in the middle of all this reading to say hello and to say thank you.
wg