Hi All
Posted: Mon Feb 25, 2008 9:11 pm
Hi everyone....glad to have found this site!
My name is Steve, 40 years old, and diagnosed with RRMS back in December following a fairly debilitating attack. I've been lucky enough to enjoy good health for my entire life, having rarely ever seen a doctor until a few months ago. Unfortunately, all of that changed back in late November.
Right around Thanksgiving, I noticed a tingling/burning in my left leg, and I recognized the sensation as being similar to when I had the shingles about 20 years ago. Went to the doctor, who didn't find anything terribly abnormal initially, and went right back home. Several days later, the tingling turned to numbness, and as the days progressed, I developed a foot drop, and was unable to walk normally. Doc puts me on prednisone and sends me for an MRI of the lumbar spine, suspecting a pinched nerve. An area of hypersensitivity near T11/L1 led to a second MRI of the thoracic spine w/contrast, and the next day, I was in the hospital hooked up to a Solu-Medrol IV. Met with the neurologist, who confirmed the diagnosis of RRMS after interpreting the various MRI scans.
The motor problems passed within two weeks, but I still had quite a bit of numbness throughout the month of December. By the time I went back for my followup appointment with the primary care doctor in January, most of it was gone. I've since regained full mobility and feeling in the leg. I've been back to work since early January, and am now back at the gym as well. Physically, I feel very well.
The neurologist pretty much gave me the choice of which of the CRAB drugs I chose to start, and I've got it narrowed down to either Avonex or Rebif. Unfortunately, the more I try to research the two drugs, the more confused I get; both have their pros and cons, but I'm having a really tough time trying to make my mind up as to which is best. I'm leaning toward Avonex because of the once a week dosage, but the thought of that IM needle is really unnerving.
Anyway, my biggest problem, post-diagnosis, is anxiety..mostly due to the uncertainty of the disease. I feel like I'm constantly spooled up all the time, and while my primary care doctor has prescribed Lexapro, I haven't started it. I really don't want to go on that rollercoaster of anti-anxiety drugs, trying to find one that works, and possibly feeling worse than when I started. BTW, I should also mention that I'm fortunate enough to have an extremely supportive wife, who has been absolutely phenomenal throughout all of this. I don't know where I'd be without her.
Anyway, that's my story in a nutshell. Looking forward to hearing from you all, as well as any advice that anyone might be willing to share regarding Avonex vs Rebif. I'm determined not to let this thing get the best of me, but it's nice to have someplace to talk about things with folks that have had common experiences. Thanks for reading.
My name is Steve, 40 years old, and diagnosed with RRMS back in December following a fairly debilitating attack. I've been lucky enough to enjoy good health for my entire life, having rarely ever seen a doctor until a few months ago. Unfortunately, all of that changed back in late November.
Right around Thanksgiving, I noticed a tingling/burning in my left leg, and I recognized the sensation as being similar to when I had the shingles about 20 years ago. Went to the doctor, who didn't find anything terribly abnormal initially, and went right back home. Several days later, the tingling turned to numbness, and as the days progressed, I developed a foot drop, and was unable to walk normally. Doc puts me on prednisone and sends me for an MRI of the lumbar spine, suspecting a pinched nerve. An area of hypersensitivity near T11/L1 led to a second MRI of the thoracic spine w/contrast, and the next day, I was in the hospital hooked up to a Solu-Medrol IV. Met with the neurologist, who confirmed the diagnosis of RRMS after interpreting the various MRI scans.
The motor problems passed within two weeks, but I still had quite a bit of numbness throughout the month of December. By the time I went back for my followup appointment with the primary care doctor in January, most of it was gone. I've since regained full mobility and feeling in the leg. I've been back to work since early January, and am now back at the gym as well. Physically, I feel very well.
The neurologist pretty much gave me the choice of which of the CRAB drugs I chose to start, and I've got it narrowed down to either Avonex or Rebif. Unfortunately, the more I try to research the two drugs, the more confused I get; both have their pros and cons, but I'm having a really tough time trying to make my mind up as to which is best. I'm leaning toward Avonex because of the once a week dosage, but the thought of that IM needle is really unnerving.
Anyway, my biggest problem, post-diagnosis, is anxiety..mostly due to the uncertainty of the disease. I feel like I'm constantly spooled up all the time, and while my primary care doctor has prescribed Lexapro, I haven't started it. I really don't want to go on that rollercoaster of anti-anxiety drugs, trying to find one that works, and possibly feeling worse than when I started. BTW, I should also mention that I'm fortunate enough to have an extremely supportive wife, who has been absolutely phenomenal throughout all of this. I don't know where I'd be without her.
Anyway, that's my story in a nutshell. Looking forward to hearing from you all, as well as any advice that anyone might be willing to share regarding Avonex vs Rebif. I'm determined not to let this thing get the best of me, but it's nice to have someplace to talk about things with folks that have had common experiences. Thanks for reading.