Page 1 of 1
Hello from Ohio
Posted: Tue Sep 30, 2008 1:00 pm
by BeccaBoom
Hello - I'm Rebecca and I'm from Ohio. After almost a decade, I've decided to re-investigate MS for my mom online. She's been on Avonex for about that long, but in the last couple of weeks, she's felt tingling where she hasn't felt it before. I'm interested in anything else that may help her or ease her suffering.
Posted: Wed Oct 01, 2008 7:17 am
by Artifishual
welcome becca, sorry hear about your mom.
Loubie is from Ohio!!!
Lots of good info on hear!!!goodluck
Posted: Mon Oct 27, 2008 4:03 pm
by Loobie
OK, for starters O H
you finish!
Welcome,
I was on Avonex for over 3 years but ended up not being able to tolerate it anymore. Has your mom had the test for NAB's (neutralizing antibodies)? That is something she may need to have done if she hasn't already being on interferon for that long. If she's been stable for ten years, keep her on the avonex for sure. But if she thinks she's starting to progress, she could always change to Copaxone or even Tysabri, although Tysabri isn't recommended unless you DON'T respond to other treatments. Copaxone is the only mainstream MS drug that isn't an interferon like Avonex. Betaseron, Rebif and Avonex are, but Copaxone is not.
Is it just starting to bother he a little, or is the tingling intense? Not that I'm going to give any diagnosis, but if it's intense and not just a little flicker, she may want to get in to see her neuro. asap. The rule of thumb I use is that if it's brand new, or gotten markedly worse and stays for 4 whole days, then it's new activity and she should see her Doc.
Other than that, welcome! What part of the buckeye state are you from? Dayton here, originally from Columbus.
Loob