Greetings from DE/PA
Posted: Mon Apr 13, 2009 7:03 am
Hello everyone. I just joined this site in the hopes of getting some sort of help and support. I don't personally have MS, but my mother does, and she doesn't have computer/internet access, so I'm here "in place" of her. I hope that's OK.
I don't have all the details, as talking about her problems to her own son isn't something she enjoys doing (or does well without tears), but here's a brief history:
Many years ago (10+), my Mom started having pain in her face and jaw area. The pain got progressively worse, and she was diagnosed w/ Trigeminal Neuralgia. After many treatments which included medicine, silicone (?) injections, and eventually a snipping of the nerve, I thought she was finally better and could simply eat, talk, or go outside in the wind without any more pain....
Now her facial pain has significantly subsided, and I'm hoping that problem has been "cured," but now her mobility has significantly been reduced (for the last 3+ years) and she's been diagnosed w/ MS. She has so much trouble walking anywhere, she can only manage the short stair climb to/from her bedroom twice per day, uses a walker to move in-house, and a wheelchair to go anywhere "out" in public, including her job. Yes, she's still working, but I'm not sure how long her employer will "tolerate" things the way they are....
My grandmother is almost finished w/ the process of selling her own house so she can move in with her daughter and take care of her fulltime. My grandmother takes my mom to work and picks her up, and is with her almost 24/7 now, helping her move around the house, cooking, cleaning, etc. My grandmother will be 80 soon, and while she's in awesome physical health, I can see that this is taking a toll on her (and my Mom) mentally and emotionally (and she won't be able to do this forever).
And while my grandmother has told me that I don't need to do anything "drastic" right now and that they're managing OK so far... I have already realized that I'm going to have to do something to get us all closer geographically so I can help out more. We're currently 1.75 hours away in a different state (I'm in northern DE and they're in Lancaster County, PA). This is killing me to see my Mom like this, especially after she spent so much of her life helping others (she's an LPN) in her job, and me with my education. And I've never seen my Grandmother break down into tears before.
My Mom is taking a handful of pills daily, plus an injection. I don't have the details as to what exactly she's on though. She just started the injection a few days ago (which replced a different one that wasn't doing anything). I could get a list of what she's on if that will help....
I'm not sure what else to say right now, other than thank you for this site, and I hope I can use it to help my Mother in some way.
I don't have all the details, as talking about her problems to her own son isn't something she enjoys doing (or does well without tears), but here's a brief history:
Many years ago (10+), my Mom started having pain in her face and jaw area. The pain got progressively worse, and she was diagnosed w/ Trigeminal Neuralgia. After many treatments which included medicine, silicone (?) injections, and eventually a snipping of the nerve, I thought she was finally better and could simply eat, talk, or go outside in the wind without any more pain....
Now her facial pain has significantly subsided, and I'm hoping that problem has been "cured," but now her mobility has significantly been reduced (for the last 3+ years) and she's been diagnosed w/ MS. She has so much trouble walking anywhere, she can only manage the short stair climb to/from her bedroom twice per day, uses a walker to move in-house, and a wheelchair to go anywhere "out" in public, including her job. Yes, she's still working, but I'm not sure how long her employer will "tolerate" things the way they are....
My grandmother is almost finished w/ the process of selling her own house so she can move in with her daughter and take care of her fulltime. My grandmother takes my mom to work and picks her up, and is with her almost 24/7 now, helping her move around the house, cooking, cleaning, etc. My grandmother will be 80 soon, and while she's in awesome physical health, I can see that this is taking a toll on her (and my Mom) mentally and emotionally (and she won't be able to do this forever).
And while my grandmother has told me that I don't need to do anything "drastic" right now and that they're managing OK so far... I have already realized that I'm going to have to do something to get us all closer geographically so I can help out more. We're currently 1.75 hours away in a different state (I'm in northern DE and they're in Lancaster County, PA). This is killing me to see my Mom like this, especially after she spent so much of her life helping others (she's an LPN) in her job, and me with my education. And I've never seen my Grandmother break down into tears before.
My Mom is taking a handful of pills daily, plus an injection. I don't have the details as to what exactly she's on though. She just started the injection a few days ago (which replced a different one that wasn't doing anything). I could get a list of what she's on if that will help....
I'm not sure what else to say right now, other than thank you for this site, and I hope I can use it to help my Mother in some way.