Tysabri Bound!
Posted: Fri Dec 17, 2004 12:58 pm
Hi -- I was just diagnosed with RRMS last week & stumbled (no pun intended) upon this site. I'm looking for some book/reading suggestions so I can learn more.
I'm 42 years old, female, married with one pre-teen daughter. On the executive team for a fast-growing company - have to travel a lot. Symptoms started 6 weeks ago with right leg numbness while I was working out. Blew it off as a pinched nerve. Then left leg weakness & foot drop a couple of days later. Family doc new it was central nervous system immediately upon exam (I'm lucky!) so got the ol' MRI & spinal tap & referral to a neuro. One small inactive lesion in brain (no symptoms) and one on thorasic spine. No others -- looks like I'm at the beginning. Am almost totally back to "normal" (without any drugs/cortizone) - just leg fatigue at the end of the day & occasion hives (on the bottom of my feet!). Have never had anything even resembling a symptom before. No family history. Had mumps as a toddler & mono as a teen.
Haven't started any drug therapy yet - my neuro is locating an infusion center cuz I'm going straight to Tysabri (do not pass "Go" or Avonex, Copaxone, etc.) My goal is drugs by Christmas! I can stand anything for a couple of hours a month....
Had a lukewarm experience with my local neuro (his diploma had dinosaur doo-doo on it -- I tried to crack a joke that at least my MRI confirmed I had a brain -- he didn't even crack a smile - LIGHTEN UP!) and feel much better after visiting the MS Clinic at Univ of Michigan. (Go Blue!) What a difference a specialist makes! I feel much more optimistic about my future, my ability to keep up at work, etc. I'm not in denial - just flipping MS the bird.
Thanks to all of you for your posts & insights -- they really help out a newbie like me! I'll post my Tysabri infusion experience as soon as it happens.
I'm 42 years old, female, married with one pre-teen daughter. On the executive team for a fast-growing company - have to travel a lot. Symptoms started 6 weeks ago with right leg numbness while I was working out. Blew it off as a pinched nerve. Then left leg weakness & foot drop a couple of days later. Family doc new it was central nervous system immediately upon exam (I'm lucky!) so got the ol' MRI & spinal tap & referral to a neuro. One small inactive lesion in brain (no symptoms) and one on thorasic spine. No others -- looks like I'm at the beginning. Am almost totally back to "normal" (without any drugs/cortizone) - just leg fatigue at the end of the day & occasion hives (on the bottom of my feet!). Have never had anything even resembling a symptom before. No family history. Had mumps as a toddler & mono as a teen.
Haven't started any drug therapy yet - my neuro is locating an infusion center cuz I'm going straight to Tysabri (do not pass "Go" or Avonex, Copaxone, etc.) My goal is drugs by Christmas! I can stand anything for a couple of hours a month....
Had a lukewarm experience with my local neuro (his diploma had dinosaur doo-doo on it -- I tried to crack a joke that at least my MRI confirmed I had a brain -- he didn't even crack a smile - LIGHTEN UP!) and feel much better after visiting the MS Clinic at Univ of Michigan. (Go Blue!) What a difference a specialist makes! I feel much more optimistic about my future, my ability to keep up at work, etc. I'm not in denial - just flipping MS the bird.
Thanks to all of you for your posts & insights -- they really help out a newbie like me! I'll post my Tysabri infusion experience as soon as it happens.