This Is MS Multiple Sclerosis Knowledge & Support Community

I am happy I have found this forum. I am a 28'ish year old Man'boy and was diagnosed with this gift that keeps on giving in mid 2008. I have relapsed 4 times since then and am ever ready to the get to the next chapter in my world win tour of MS torture. The doctor was nice enough to confirm my inquiry that I have had MS since my early 20's. hip hip hoooray!

I am blessed to have the great fortune of fatigue, numbness, tingling, chronic pain, sleep paralysis, brainfog and short term memory loss.

In the past year I have made a decision to not let this disease beat me and then I jumped into a phone booth and stumbled out wearing the same clothes I had on before. Superman I am not, but I do have super powers. I can create blindness, headaches, sleepiness, memory loss and pain on my enemies. The only problem is this, my apparent enemy is I.

I am starting a charity. The name is under wraps until we have it fully established, but it will touch the lives before, during and after the disease we share and any other crippling, debilitating and deadly blessing we receive. It will out line the amazing things we have done and will continue to do. It will give us a voice when we can not speak, it will allow our legends to live on forever when we rest. We will not be forgotten for the amazing things we have done. Please PM me if you would like to be involved.

Thank you for having me. And remember, today is just a few hours from tomorrow and the sun always comes tomorrow. Live today for a better tomorrow. Seek tomorrow for a better today. Do not let life bog you down. Bog the bog by refusing to bog!

Hi catchesya,

I am a newbie myself, but I was captivated by the title of your post. Blessed indeed are you! Your post was so uplifting, and I was amazed at your ability to recognize the very strength that is nurtured by your outward illness. You have obviously been graced with wisdom and discernment. I pray that you will continue to grow.

And I would love to know more about your new charity.

Thanks for sharing,

Sarah

Welcome Dude,

Great post. Take some time and poke around on here. There's a lot of info. that you just don't find other places. You will also find good support and answers to any and all of your burning questions. You're among friends for sure.

Thank you for the warm welcome. It is a trip, a trip that would have been easier had I known about this site a year ago. But like the sexiest girl that is late for prom, I am here, but I am a man child with MS. So in some weird tribal culture, I am sure to be the sexy something. Late but just on time for fate.

catchesya,

welcome to our world and to our amazing group. You will fit in well here since we too are all sexy somethings.

Keep us posted on the charity.

Cat

Thank you Cat.

As far as the charity goes, it is going to be based around a book that I am writing that will in turn have an associated web site. The book is my version of the amazing things I have done before and during MS. The website will be the same for the public. It will be a venue in which our Paul Bunyan tales of adventure, survival, conquest and achievement...it will be the legend of I, the legend of you, the legend of us.

This venue will give the world something to read for time and again about the legends of people past and present. It will inspire and above all, we will not be counted out! Whether it is MS, Cancer or one of the other great hurdles that only few are chosen to jump, my amazing life and yours will be heard.

Before MS I could do anything I set my mind on. Now, I can still do anything, but with my "super powers" listed above, the adventures are just that more important to tell.

I wish I was Type A, I wish I was an egomaniac, I wish I was a narcissist... But I am I and I has a need to speak just like you do. And maybe travel and jump on Oprah's couch like a short famous actor. I/we will continue to do amazing things.

I wish I could say the name now, but I am just waiting for the 501(c)(3) to happen. Then it is on!

Start thinking of the amazing things you lived through, have done, have experienced and the amazing things you do now. We are the Rock Stars of the MS Generation and we will ROCK ON with or with out...um...Oprah?

catchesya,

You don't have to be an Egomaniac or a narcissist to be a Type A. I bet deep down you are a Type A, most MS'rs are.

Your website sounds cool and I understand why you can't devulge any more yet. I believe the journey we have been on in our lives that have brought us to the point we are at now - MS - is an amazing story we each could tell.

I, myself have been through many many stressful and wonderful things that the stories could make up a book. But, I am not a writer and MS seems to have taken so many of my words away.

Cat

Catch,

Welcome! I am a newbie as well but have yet to receive my "official" diagnosis. I believe I have had MS for 7 years, I am 26.

Your idea for a charity, book and website sound like a great outlet for those with MS. And also a great source for others wondering about MS or dealing with it within their circle of family and friends.

I have put together one website and am currently working on a second, unrelated to MS. If you have any questions, I'd more more then happy to help out. Although, you may be a cyber space genius in which point, I can not teach you anything. LOL!

Hi Catchesya,
Welcome to ThisIsMS.

catchesya wrote:I am starting a charity. The name is under wraps until we have it fully established, but it will touch the lives before, during and after the disease we share and any other crippling, debilitating and deadly blessing we receive. It will out line the amazing things we have done and will continue to do. It will give us a voice when we can not speak, it will allow our legends to live on forever when we rest. We will not be forgotten for the amazing things we have done. Please PM me if you would like to be involved.

Please keep in mind the Rules of the Board which state:

[color=blue]Arron[/color] wrote:NO advertising is allowed on the message boards, period. If you like a product, you can tell us about it. But if you gain financially from selling said product, your posts will be deleted and you will be banned from the site without warning. Thank you for your understanding of this simple rule.

Thanks, NHE

I appreciate the loud and clear. Thank you for having me.