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Hi I have MS and so does my Neuro
Posted: Thu Jan 20, 2005 10:55 am
by LindaNY
Hi my name is Linda, I have had MS for 3 years and I will be starting Tysabri. I am currently on Rebif but I just went to my neuro and he said I can stop the Rebif a couple of weeks before Tysabri. I can't beleive I don't have to get the injections anymore. I am a nurse but I can't give the injection to myself so my husband does it. I can give them but I can't receive them, LOL. I have 3 small boys one is a baby. They are wonderful. This Tysabri is really wonderful and I asked my Neuro who also has MS about the infection with it. He said you are still are protected because the molecule that attaches on to the T-cells (immune cells) doesn't attach to all of them so you are still protected againest infection. Though I would share.
Love and God bless
Linda
Posted: Thu Jan 20, 2005 5:33 pm
by MOMTO3
HELLO LINDA,
IF YOU DONT MIND ME ASKING, I SEE YOUR NAME SAYS NY AND WAS WONDERING WHERE IN NY AND WHO IS YOUR NEURO, ASI AM ALSO IN NY AND CURRENTLY NEED TO FIND A NEW ASAP AND A RECENTLY HAD TO CHANGE MY INSURANCE AND WHO I WAS SEEING DOES NOT ACCEPT MY NEW INSURANCE. THANKS
Posted: Thu Jan 20, 2005 6:14 pm
by LindaNY
Hi Momto3, I am in Brooklyn. Also look under Tysabri post, there is a video on my neuro. His name is Dr Vincent Macaluso. Good Luck and God bless.
Linda
Posted: Sat Jan 22, 2005 12:11 pm
by Arron
Linda, a belated welcome to the site. It is always a gift to have members of the medical community with us.
Posted: Thu Feb 24, 2005 3:07 pm
by LindaNY
Hi Aaron, Glad to be here. This forum is very informative. Thank you
God bless
Linda
Another New Yorker
Posted: Sun Mar 06, 2005 11:31 am
by ms_gkygrl
Hi,
I'm a New Yorker as well but am Upstate. I see Dr. Neil Lava in Albany. He is excellent!
Anyone from Upstate?
- Diana
P.S - I heard Dr. Macaluso speak at a seminar -- AWESOME!
Posted: Mon Mar 07, 2005 4:46 pm
by Outlawbiker
I'm Gilbert and a former Health Tech with the Veterans Administration. I'm in upstate NY as well. Father of two (boy and a girl). Have been officially retired since 2001. I was Dx'd Oct, 2000
Thanks to MS, I decided it'd be safer to retire. The things I'd forget were starting to scare me. Now I just drive the ol' lady crazy forgettin' stuff around the house. Nothing life threatening.
I'm "in between" neurologist's as the VA Medical Center in Syracuse is FINALLY providing an MS specific Neurologist for Vets like me.
We'll see where this leads.
Posted: Mon Mar 07, 2005 7:44 pm
by Arron
Hi Diana, welcome to the site.