Page 1 of 1

Hi Everyone from Newbie,

Posted: Thu Nov 26, 2009 11:18 am
by Chuck123
I am the caregiver to my Dear wife who was D/X with RRMS two months ago. She is 2.5 on EDSS. Age 47, and healthy, exercises extensively. taking Copaxone.
Discovered this wonderful site last weekend.

Some have asked about CCSVI -MRv and MRA. We live in Niagara Penninsula. We are having CCSVI test done next Monday in Buffalo [cost 900.00 US]
We are working through Don/Bev Hamilton -Smith who are based in Canada They require a requisition from your GP, Neurologist, or Specialist. [Fax number is 905-615-7741, to set up app't---probably within week] For more information you can call Don or Bev at 905-615-4470.
UPDATE:
Monday Nov 30th, We have been to hospital today for MRV and MRA. Thanks to adivice we received last eve. It is important to specify MRV according to Dr.Zamboni protocol.
My Dear wife [patient] has to go back next week for further MRV. We in some respects, consider ourselves first patients, however clearly don't mind trying to do our bit for MS.


Sure hopes this helps a little bit.
Chuck 123

Posted: Mon Nov 30, 2009 7:56 am
by CRHInv
Welcome! It sounds like you are on your way! This has been a really wonderful place for me for answers and support. I hope you have the same experience.
Take care!

Posted: Mon Nov 30, 2009 6:44 pm
by Chuck123
Thanks CRHINV,
Boy we are learning a lot too quickly. One thing for testing to follow Dr Zamboni's protocol you are looking for MRV plus if possible not just MRA.
Were at hospital today have to go back next week today's test not conclusive.
In any event. thanks ever so much for post and help.
Chuck123

Welcome Chuck

Posted: Mon Nov 30, 2009 8:21 pm
by SandyK
Hi Chuck. There is a ton of great information here. I am learning more than I ever had in the 16 years since I was diagnosed. Good luck to your wife.

Posted: Tue Dec 01, 2009 3:18 am
by Chuck123
Thank you Sandy,
We all will keep trying.
Good luck.
Chuck