This Is MS Multiple Sclerosis Knowledge & Support Community

Hi everyone,
I'm glad I joined this forum. I feel at home with people who understand what I'm going through. Been on Avonex, Rebif and Copaxone. In Sept. of 09, my doctor took me off medication said "I was progressive" I did progress, but without an MRI, I believe he's wrong, I believe I'm RRMS.
I really want to do this procedure, I want to feel like me again. I feel like the light at the end of the tunnel is really close. I never felt so positive as I do now.

Happy New Year,
2010 will be the year we conquer MS!!!

Welcome Anna!
I am glad you found this place. It has been a great place for me to learn and find support. I am glad you have hope. I think this is a very hopeful time and I think hope really helps our condition. When you say 'procedure', I think you are speaking of CCSVI treatment. I that is so, I will tell you there is soooo much to hopeful about. Of course I think I was one of the least disabled here to have the procedure, and everyone is different, but yes, I feel like me again. Me with numb hands and some other quirks still, but me.
Take care,
Beth

Hi Beth,

I am talking about CCSVI. I know Dr. Zamboni is right. I'm not a doctor, but looking back to 1987(when it all began) I ALWAYS had and still do have pressure in my head, but that's not all (too long to get into) sufice it to say, it makes so much sense to me.

Hi Beth,
I forgot to ask about the cost? and is Stanford still doing the stents?? I am willing to go anywhere to have this done. As for the cost, my friends (thank God for friends) will help me pay for the procedure.
I need to do this A.S.A.P. I feel like I have MS forever.

Anna, Come over to the CCSVI portion of the website. If you use the search feature you will be able to find answers to many, many questions. Dr. Dake is not doing the procedure right now. He will be starting a study early 2010 where he will be doing it again. As far as cost, I'm not even sure. My insurance has covered all the bills I have seen so far, but I don't think I have them all yet. This is something that varies, depending on your insurance. Alex is great about helping to get this all lined up.
Take care,
Beth

Thanks for the info