What do you do when you have a flare up?
Posted: Thu Feb 07, 2013 8:14 am
I am lucky enough that I have not had any flare-ups since those involved with my initial diagnosis. During the first several months, anytime I noticed something weird, like tingling or numbness, or something off with my vision, I would mention to my doctor and ask if it was a flare up.
His response was that there wasn't a real way to be sure...he said he had weird tingling in his leg sometimes but he didn't have MS. He said even if it was a neurological event, but it wasn't interfering with my normal function, they wouldn't do anything for me anyway (i.e. no steroids like I had the first time) so, it didn't really matter if it was a flare up or not. My regular MRIs will tell us how the MS is progressing in my body.
Three years later and I am feeling something strange in my neck that is reminiscent of my onset symptoms. Hopefully I just slept weird on it. But it raised the question for me...what do other people with MS do when they have symptoms that don't really affect their ability to go about out the day normally? The doctor who said that to me is no longer my doctor anymore, and I have yet to find a neuro in my new town that I really like.
I would love to hear anyone's experiences. Thanks.
His response was that there wasn't a real way to be sure...he said he had weird tingling in his leg sometimes but he didn't have MS. He said even if it was a neurological event, but it wasn't interfering with my normal function, they wouldn't do anything for me anyway (i.e. no steroids like I had the first time) so, it didn't really matter if it was a flare up or not. My regular MRIs will tell us how the MS is progressing in my body.
Three years later and I am feeling something strange in my neck that is reminiscent of my onset symptoms. Hopefully I just slept weird on it. But it raised the question for me...what do other people with MS do when they have symptoms that don't really affect their ability to go about out the day normally? The doctor who said that to me is no longer my doctor anymore, and I have yet to find a neuro in my new town that I really like.
I would love to hear anyone's experiences. Thanks.