Anecdote's personal treatment regime
Posted: Sun Nov 14, 2004 8:50 am
Posted originally: Fri Jul 09, 2004 6:39 pm Post subject: Treating for Chlamydia pneumoniae - a possible cause of MS
Treatment:
rifampicin, 300mg twice a day
or, as originally started: doxycycline, 200mg once a day, but would have to be avoided during pregnancy
roxithromycin, 150mg twice a day (which could be substituted by azithromycin in the States)
B-12, 5000mcg sublingually every day
co-enzyme Q10 in large dosages
4000mg Fish Oil per day
Vitamins A,B,C,D,E, selenium and magnesium in large dosages
acidophilus, several capsules as required.
activated charcoal 8-12 capsules a day
Also, five day bouts every three weeks or so of:
metronidizole, 400mg three times a day
Recently added to my regime, early 2005, but because of this, am now not so assiduous in the amount of other supplements taken, especially the charcoal:
Acetyl L-carnitine 500mg maybe twice a day.
Useful because:
Alpha lipoic acid 300mg two or three times a day, as the anti-oxidant par excellence.
chlorella 12 tablets a day: they are only tiny and I manage to swallow them all in one go.
http://chlorella-europe.com/index.html
Especially if your disease is very active when first starting the treatment, it might be better to wait until you have been on the regime for six months before starting this, because boosting the immune system might not be advisable at this time.
(Started with the immunomodulatary doxycycline before moving to the completely non immunosupressant rifampicin.)
Treatment time aims to be non stop for maybe a couple of years, but actually only one year in the end, then back to doxycycline, which can be taken intermittently, taking three week courses every three months, with a week of metrononidizole during the second week.
The aim is to be MS free after this time, and so far I am succeeding, as my most recent MRI shows.
I must have had multiple sclerosis for about 15 years, looking back, in the relapsing remitting form, but the relapses were so minor, so far apart and so soon gone, that it never really occurred to me. As soon as I got over each attack I would forget about it and get on with life.
Things suddenly took a turn for the worse a couple of years ago though, when what was thought at the time to be a minor viral infection left me hardly able to walk across the room, with legs numb from the knees downward and severe vertigo. This somewhat cleared up after a number of weeks, but by no means completely. Then a major gynaecological operation a year later so traumatised my system that I began an inexorable downward spiral of SPMS. I was living in a kind of mental fog, not even realising how bad I was getting, until my first MRI scan and resultant diagnosis by a neurologist brought it home to me, in August last year: “secondary progressive multiple sclerosis. There is no treatment and no cure, so go home and find out what you can about the disease, see the MS nurse and then I will make an appointment to see you again”. This is not what an artist who had only recently finished the biggest commission so far in her career wants to hear, especially when she suddenly finds she has lost the use of her painting hand. Over the next few days I was completely distraught, thinking that I would probably never be able to paint again. What could I do? I began to realise that I was going so rapidly downhill and would soon have need of a wheelchair and worse. Well, I never did need that wheelchair or go to see the MS nurse and you can find out more by looking at:
http://www.davidwheldon.co.uk/ms_treatment.html
Back in August 2003, I could barely hold a paintbrush, never mind do anything with it. Now I can tackle a more than creditable full-page watercolour, (see below) and am getting more strength back by the day.
I had a second MRI scan a couple of months ago. The results of this were completely unexpected by the radiologist, who came rushing out of his room to show us the results. Not only were there no new lesions at all, but also the vast majority of the existing lesions were vastly diminished in both intensity and size. This is certainly not the normal course of events with someone with progressive MS.
Reason for this treatment:
Chlamydia pneumoniae as the supposed cause of MS
Sarah
Treatment:
rifampicin, 300mg twice a day
or, as originally started: doxycycline, 200mg once a day, but would have to be avoided during pregnancy
roxithromycin, 150mg twice a day (which could be substituted by azithromycin in the States)
B-12, 5000mcg sublingually every day
co-enzyme Q10 in large dosages
4000mg Fish Oil per day
Vitamins A,B,C,D,E, selenium and magnesium in large dosages
acidophilus, several capsules as required.
activated charcoal 8-12 capsules a day
Also, five day bouts every three weeks or so of:
metronidizole, 400mg three times a day
Recently added to my regime, early 2005, but because of this, am now not so assiduous in the amount of other supplements taken, especially the charcoal:
Acetyl L-carnitine 500mg maybe twice a day.
Useful because:
It certainly helps against fatigue!Carnitine and acetyl-L-carnitine both enhance immune function.
Acetyl-L-carnitine protects nerve cells from stress and deterioration, and may prevent Alzheimer's disease.
Acetyl-L-carnitine natuarlly increases mental energy and helps relieve depression.
Carnitine enhances liver function.Without optimal liver function, optimal health is not possible.
Courtesy of Robert Crayhon M.S.
Alpha lipoic acid 300mg two or three times a day, as the anti-oxidant par excellence.
chlorella 12 tablets a day: they are only tiny and I manage to swallow them all in one go.
Copied from:Yaeyama Chlorella is a single-celled algae, a whole food, containing zero binders, preservatives or fillers, but filled with 100% natural ingredients.
Millions worldwide are taking Chlorella because it:
Lessens the severity of an illness, and you recover more quickly from it
Relieves the effects of arthritis and fybromyalgia pain
Protects the brain from age-related memory loss
Normalizes blood pressure and promotes a lower 'bad' cholesterol count
Detoxifies the body, removing even heavy metals and pesticides
Protects against some cancer-causing agents found in food
Boosts the immune system, increasing the body's resistance to bacteria, viruses, and toxic chemicals
Regulates digestion and supports good bowel health
http://chlorella-europe.com/index.html
Especially if your disease is very active when first starting the treatment, it might be better to wait until you have been on the regime for six months before starting this, because boosting the immune system might not be advisable at this time.
(Started with the immunomodulatary doxycycline before moving to the completely non immunosupressant rifampicin.)
Treatment time aims to be non stop for maybe a couple of years, but actually only one year in the end, then back to doxycycline, which can be taken intermittently, taking three week courses every three months, with a week of metrononidizole during the second week.
The aim is to be MS free after this time, and so far I am succeeding, as my most recent MRI shows.
I must have had multiple sclerosis for about 15 years, looking back, in the relapsing remitting form, but the relapses were so minor, so far apart and so soon gone, that it never really occurred to me. As soon as I got over each attack I would forget about it and get on with life.
Things suddenly took a turn for the worse a couple of years ago though, when what was thought at the time to be a minor viral infection left me hardly able to walk across the room, with legs numb from the knees downward and severe vertigo. This somewhat cleared up after a number of weeks, but by no means completely. Then a major gynaecological operation a year later so traumatised my system that I began an inexorable downward spiral of SPMS. I was living in a kind of mental fog, not even realising how bad I was getting, until my first MRI scan and resultant diagnosis by a neurologist brought it home to me, in August last year: “secondary progressive multiple sclerosis. There is no treatment and no cure, so go home and find out what you can about the disease, see the MS nurse and then I will make an appointment to see you again”. This is not what an artist who had only recently finished the biggest commission so far in her career wants to hear, especially when she suddenly finds she has lost the use of her painting hand. Over the next few days I was completely distraught, thinking that I would probably never be able to paint again. What could I do? I began to realise that I was going so rapidly downhill and would soon have need of a wheelchair and worse. Well, I never did need that wheelchair or go to see the MS nurse and you can find out more by looking at:
http://www.davidwheldon.co.uk/ms_treatment.html
Back in August 2003, I could barely hold a paintbrush, never mind do anything with it. Now I can tackle a more than creditable full-page watercolour, (see below) and am getting more strength back by the day.
I had a second MRI scan a couple of months ago. The results of this were completely unexpected by the radiologist, who came rushing out of his room to show us the results. Not only were there no new lesions at all, but also the vast majority of the existing lesions were vastly diminished in both intensity and size. This is certainly not the normal course of events with someone with progressive MS.
Reason for this treatment:
Chlamydia pneumoniae as the supposed cause of MS
Sarah