This Is MS Multiple Sclerosis Knowledge & Support Community

Alex, I read that somewhere and it kind of makes sense, because, like pregnancy and breasts that are too large, it throws you off balance. I'm not talking from experience of any of these things, just reasoning. Will it soon be all finished?

Sarah

2 more days. And tomorrow is my last injection day. Yippeee! I feel like a bloated pin cushion. I look pregnant. It's just not natural to bloat up like this in 7 days.
I think the walking nerve can be impacted somewhere when one is constipated so maybe it's not the hormones but the mango sized ovaries!

goodness ALex! I wish you well. I surely have some leg issues and also some female issues so I can say it seems connected to me as well. Here's to the last shot!
marie

I'm feeling very horrible after having had 15 eggs removed this morning so I'm on a rant but really my walking over the last few days has led me to believe that one and a half years of antibiotics has done absolutely nothing to improve my walking. I probably have all the damage in the spinal cord so will never walk again properly and the compression of the lumbar or sacral nerves due to IVF treatment has only highlighted this. I think that if the antibiotics do work it's important to start them immediately since I was just under a year into problems with walking when I started them and even then it's too late.

Alex,
Hang in there! The procedure you just went through is sooo hard - emotionally and physically draining!

I am glad you have had the eggs removed and the IVF procedure is done and you have enough eggs that you will have 3-4 treatments to try to get pregnant if you doctor is anything like mine. The maximum amount of eggs implanted at a time was 4 when I had the treatment here in the states. My mom brought me home from procedure and on the way ran over lots of potholes in road (I was thinking what are you doing ) as she was worried more than one egg would take - I would have gone for twins, but she only wanted me to have one at a time.

IVF is probably the reasons you are suffering but I believe you will get back to where you were before IVF but it will take at least a month.

Whenever I have been put under for a surgical procedure it puts me out for at least a few weeks. My last procedure was IVF - it was in 1999.

My eye doctor has been after me for 4 years - he wants me to have small cataracts removed from my eyes and claims treatments is easy and my thinking is as long as my vision is good enough to drive - I am not doing it!

I think the antibotics will keep you safe - but right now you are feeling horrible and will be for a while - try to do a lot of things for yourself now so you will get better soon.

Let us know how your doing!

Thanks Wiggy! I must say I'm feeling very sore. I can hardly sit. And I feel sick. And I can't walk.
And I'm very thirsty for water. Think I'll just stay in bed for a few weeks!

Alex, when I had anaesthetic for a gynaecological problem a year before I started antibiotics, I never felt so ill in my life for a few days when I was recovering from that, I felt sick, I couldn't bring my self to eat anything, I didn't know where to put myself and I just drank and drank. I blamed the hospital for the quality of the food, which I thought smelt disgusting and David brought me in some plain, boiled chicken, but I ate very little of that even. I didn't want to see or talk to anyone but I couldn't even concentrate on reading. A few days later I was all over this and walked out of the hospital in the same way as I had walked in. That evening I was back to eating normally and I felt hungry. I was still drinking water, but not because I was particularly thirsty. You won't want to stay in bed for a few weeks, the soreness will soon go.

Sarah

Gib- When I did IVF, way before any inkling of MS, it made me totally miserable. It's just the price you pay, unfortunately. I think you'll see major changes as soon as the stuff clears your system. As for feeling so negative about everything, I felt that way, too. The hormones wreak havoc on your emotions, but it passes. It will all be worth it when you have a beautiful baby on your knee.

This has become more of an IVF thread than an antibiotic thread. I'm still very sore and swollen from the IVF which I had a few days ago. In fact I'm going to have a scan tomorrow to check I haven't developed hyperstimulation of the ovaries which basically means bloody enormous ovaries. This is because I'm now feeling quite sick, my stomach is painful and distended and seems to be getting more so. My walking is also terrible. The foot burn and spasms aren't very noticeable/are normal so the walking must be something to do with squashed innards. Or I don't know. I can't believe I thought this would be easy!

Alex, I do hope you are feeling better soon. I dug out the stuff about the Vanderbilt trial for you because I had it all to hand, so I thought it would save you the trouble.

Sarah

Hi Sarah,

Thanks for that. It's awful to see the atrophy in the MS brain. Yikes. Am glad my brain is hopefully not shrinking.

I wish the same could be said for lower down. I was pleased to hear that I don't have hyperstimulated ovaries but that they are simply very large and therefore vomiting, nausea and distended abdomen symptoms are normal. Nice. Another week before I'll be back to normal, apparently. Hopefully my walking might get better then too.

Alex,
So happy to hear you do not have that ovary condition as that is what happened to the women in my office that was doing IVF at the same time as me and it was a little longer recovery.

Glad you will be better in a week - you sound better!

Ow, hyperstimulated ovaries must be truly SCHRECKLICH. I hope your colleague had successful IVF because with this level of pain one really wants a good result with it.
I managed 600 meters today. But it wasn't at all easy. The doctor said that my ovaries are pressing on all sorts of nerves and organs so all of them are liable to malfunction a bit. Nice.

Hi Alex, no, I doubt if your brain is shrinking, but I guess you wish your ovaries were! Wiggy is right, you do sound better.

Sarah

It's been approximately 3 weeks since I completed some horrendous fertility treatment which at the time severely affected my walking and bladder/bowel problems. The latter have now largely resolved but my walking is still much worse than before the fertility treatment. As this is extremely depressing as indeed was the fertility treatment I started to take last week a much needed anti-depressant called imipramine. I also started taking 5-HTP supplements since I think this may be helpful too. Not only does the anti-depressant cheer me up but it helps with bladder problems. Combined with exercise this anti-depressant has been shown to increase brain derived neurotrophic factors (BDNF) in the rat hippocampus. People with progressive forms of MS have low levels of BDNF whereas remitting forms of MS have higher levels than controls. So having more BDNF strikes me as a good idea. However the first day I took only 25mg of imipramine I had severe night spasms and needed 12mg of zanaflex to control them, which is a record for this year. Additionally on the first day I was scarcely able to manage 5 meters as my right foot became extremely stiff. This has improved, with today managing about 500 meters without limping too badly but was difficult beyond that. So, so far the treatment has not been a success for improved mobility. However this may be just getting used to the anti-depressant which clearly affected my bad leg. Interestingly I have had a big flare in movement-induced phosphenes since starting the anti-depressant.

I have completed my 23rd pulse of flagyl and continue to take roxithromycin and doxicycline.