Possible ms diagnosis?..scared,confused
Posted: Sat Dec 10, 2011 9:19 pm
So in mid October I was at work and started feeling off, as the day went on I noticed my handwriting was off, by the next morning I felt like my leg was super heavy so I took the day off from work. The day after when I woke up my gait was off and my hip down was numb, was referred to a neurologist who got me a ct scan. That came back clear, by this time my balance and motor skills were off. The neurologist then sent me for an MRI which took a week to get the results. I spent the week off from work waiting for my motor skills, walking and balance to return to normal.
My MRI came back with 6 small lesions (1-2mm in size) 1 lesion was active and was a little bigger like 8 mm and was the reason for losing my balance, motorskills and numbness. She told me at this point I had possible ms but we would need time to determine how my brain changed, so I took another week off from work to give my body time to heal.
The Sunday before I was to go back to work I woke up super dizzy and nauseous. By two hours of throwing up nothing I went to the er and by this point could no longer see, the neurologist saw me six hours later and gave me an iv of steroids. She then checked me into the hospital for four days for four treatments of steroids, by the time I was discharged my vision had improved but I still could not see. I have spent the last 4 weeks getting my vision back as well as getting rid of the numbness in my body. I have been super tired, easily fatigued, lots of headaches and yet face insomnia at the best of times.
I have not seen my neurologist in 6 weeks but have been referred to the ms clinic for further testing. I have 2 more weeks till that appointment and im really worried about misdiagnosis, I always thought ms was only diagnosed when other things have been ruled out but nothing has been tested no blood work, very little research into my life and history just the fact that I had symptoms and have 6 lesions...I'm sorry for the long rant I'm just wondering if this is normal protocol for diagnosis or not?! My husband and I were just getting ready to try for kids and I want to make sure I'm not mis-diagnosed so I don't pass any thing onto future kids that could have been prevented. Needless to say no one understands the stress, depression and confusion I have been feeling so I thought I would see if I can get some support from this forum.
My MRI came back with 6 small lesions (1-2mm in size) 1 lesion was active and was a little bigger like 8 mm and was the reason for losing my balance, motorskills and numbness. She told me at this point I had possible ms but we would need time to determine how my brain changed, so I took another week off from work to give my body time to heal.
The Sunday before I was to go back to work I woke up super dizzy and nauseous. By two hours of throwing up nothing I went to the er and by this point could no longer see, the neurologist saw me six hours later and gave me an iv of steroids. She then checked me into the hospital for four days for four treatments of steroids, by the time I was discharged my vision had improved but I still could not see. I have spent the last 4 weeks getting my vision back as well as getting rid of the numbness in my body. I have been super tired, easily fatigued, lots of headaches and yet face insomnia at the best of times.
I have not seen my neurologist in 6 weeks but have been referred to the ms clinic for further testing. I have 2 more weeks till that appointment and im really worried about misdiagnosis, I always thought ms was only diagnosed when other things have been ruled out but nothing has been tested no blood work, very little research into my life and history just the fact that I had symptoms and have 6 lesions...I'm sorry for the long rant I'm just wondering if this is normal protocol for diagnosis or not?! My husband and I were just getting ready to try for kids and I want to make sure I'm not mis-diagnosed so I don't pass any thing onto future kids that could have been prevented. Needless to say no one understands the stress, depression and confusion I have been feeling so I thought I would see if I can get some support from this forum.