My Intro..
Posted: Fri Jan 28, 2005 3:20 am
Hey. 21 year old aussie male, diagnosed with MS. This is probably my worst nightmare come true. I could probably deal with cancer better but living my life in pain and paralysis seemed worse.
Then I realised that the internet was such a wonderful resource for information and there is great hope, although not "Clinically" proven I am on my search for LDN currently and am going to start Copaxone, might eventually dump that.
So here's my quick story. I've had "MS" since I was 17 according to the Neuro who saw my MRI's, im not happy with him btw, in process of finding a better one, but I believe according to a well known doctor in my country (australia) we dont have any good ones here in my state, considering flying interstate to see one who knows their stuff. Dont know if that's actually gunna reduce my lesions though, so kinda tossing up whether or not there's any point.
Neuro rejected my "application" for LDN. Saw a GP today who is looking into it with the pharmacy, etc who makes it and I find out in 4 days. I hope it all goes well. If I lived in the US, I'd just fly to new york and see Bihari or someone who is a known prescriber, unfortnuately I dont have that luxury.
Oh yeah I had a shocking time on Rebif. One book I read on IFN said "Side effects are more common in younger patients & patients with a lower body mass" - I'm 5"10 & 137, BMI = 19.7. So I'm skinny. Lost my job over it, but I see it as a blessing in disguise, beacuse it's given me time to properly research this disease and find out about things like LDN etc.
Anyway I've said enough. Thought Id just chime in and say hi and hope to see some other youngin's around. It's a shame we have to deal with this so early in life, before we start a family (Some may have already) bought a house, etc, the only thing I'm thankful for is I have good private health insurance.
Catch ya's round. Ash!
Then I realised that the internet was such a wonderful resource for information and there is great hope, although not "Clinically" proven I am on my search for LDN currently and am going to start Copaxone, might eventually dump that.
So here's my quick story. I've had "MS" since I was 17 according to the Neuro who saw my MRI's, im not happy with him btw, in process of finding a better one, but I believe according to a well known doctor in my country (australia) we dont have any good ones here in my state, considering flying interstate to see one who knows their stuff. Dont know if that's actually gunna reduce my lesions though, so kinda tossing up whether or not there's any point.
Neuro rejected my "application" for LDN. Saw a GP today who is looking into it with the pharmacy, etc who makes it and I find out in 4 days. I hope it all goes well. If I lived in the US, I'd just fly to new york and see Bihari or someone who is a known prescriber, unfortnuately I dont have that luxury.
Oh yeah I had a shocking time on Rebif. One book I read on IFN said "Side effects are more common in younger patients & patients with a lower body mass" - I'm 5"10 & 137, BMI = 19.7. So I'm skinny. Lost my job over it, but I see it as a blessing in disguise, beacuse it's given me time to properly research this disease and find out about things like LDN etc.
Anyway I've said enough. Thought Id just chime in and say hi and hope to see some other youngin's around. It's a shame we have to deal with this so early in life, before we start a family (Some may have already) bought a house, etc, the only thing I'm thankful for is I have good private health insurance.
Catch ya's round. Ash!