Appt with MS Specialist
Posted: Tue Nov 01, 2011 3:30 am
So yday me and my DH met with a MS specialist and she finally confirmed the diagnosis of MS for my DH. Though he has not had a clinical onset yet (RIS for now), she convinced us to start copaxone (which took a solid 1 hour, and she was pretty open and honest about the odds). She was pretty patient with us and took the time to give her opinion about varied questions I threw at her including, LDN. CCSVI, HSCT etc. Spent two and half hrs with us and did several tests including optical tomography and several neuro examination.
Why I wanted to post this here is that ... She is a neuro who totally believes on HSCT and is heavily excited on the trial III results from Dr' Burt's chicago trial. and I was pretty excited to hear that. She was up to date on all Stem cell related trials including the one that just started in cleveland and even had a few other info on trials in canada and europe.
But, I am just hoping that her words come true in my DH's case, where in she was able to track down his first symptom to be the a very mild numbness on and off on his right toe 8 yrs back (which has not progressed yet). Since she said he has a pretty normal neuro examination and no relapse for 8 and odd yrs and if this continuos for another 2-3 yrs then may be he will just have a milder course and not need any HSCT procedure and we can probably tackle his course with just first line of treatments and may be the big guns including tysabri, gilenya or may be the BG12.
I am glad that we found a good MS neuro who is aware of HSCT trials and who supports them. 'Cause this has been our long term fallback plan since we heard about my DH's RIS diagnosis.
Why I wanted to post this here is that ... She is a neuro who totally believes on HSCT and is heavily excited on the trial III results from Dr' Burt's chicago trial. and I was pretty excited to hear that. She was up to date on all Stem cell related trials including the one that just started in cleveland and even had a few other info on trials in canada and europe.
But, I am just hoping that her words come true in my DH's case, where in she was able to track down his first symptom to be the a very mild numbness on and off on his right toe 8 yrs back (which has not progressed yet). Since she said he has a pretty normal neuro examination and no relapse for 8 and odd yrs and if this continuos for another 2-3 yrs then may be he will just have a milder course and not need any HSCT procedure and we can probably tackle his course with just first line of treatments and may be the big guns including tysabri, gilenya or may be the BG12.
I am glad that we found a good MS neuro who is aware of HSCT trials and who supports them. 'Cause this has been our long term fallback plan since we heard about my DH's RIS diagnosis.