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Some thing that works for me.

Posted: Fri Dec 18, 2009 5:28 am
by nomissbehaven
I have been doing Polarity and Cranio-Sacral therapy for the past year and other than what she does for me she has given me specific body movements that seem to wake up nerves and have increased feeling and movement. I would like to know if there is any-one else who have done this type of treatment :?:

Posted: Mon Dec 21, 2009 1:47 pm
by Katie41
Hi nomissbehaven,

I've done Polarity and Cranio-Sacral therapy for years. I also did Feldenkriss (sp?). Feld. helped me become aware of how normal feels so when I begin to slump or walk differently, I am able to correct it. It also helps me remember how to sit in a chair properly.

Polarity and Cranio-Sacral has helped me maintain a fairly good stasis, so that when something came along (like CCSVI) I would be in good enough shape to benefit from it. It definitely helps me walk better, stand up straighter, and helps my liver, kidney, and lungs function better.

When I was first diagnosed, 15 years ago, I also did chelation therapy. That helped immensely! My leg muscles were almost completely atrophied. After chelation, my leg muscles returned to almost "pre-MS" tone.

I have relied completely on alternative treatments rather than go on drugs. I looked around and saw that the people I saw on drugs were not doing particularly well. I decided not to go that route, and, for me, am very glad I did.

I work with diet extensively, only good fat (as important to have it each day - avacado, fish oil, olive oil - as it is to have no bad fat). I do supplements: fish oil; Cal Mac and homeopathics (symphytum 6X) to make cramps disappear; vit D.

I use chiropractic (one who does Cranial-Sacral adjustments with an "activator") to keep me going each week. The PT who does Sranial-Sacral and Polarity works on a much deeper level, once a month.

I also sleep on a magnetic pad. This has helped greatly with my energy level. A side benefit is that I only need about 7 hours of sleep. Quite striking to what it was before.

I tried hyperbaric O2 therapy, this summer. I had great results that lasted a few minutes to three months, depending on the symptom. So, I know that increased O2 is very helpful to me. Unfortunately, hyperbaric is very expensive, and for me (transitory); however, my son-in-law's step-mother did hyperbaric 15 years ago and has not had any MS symptoms since.

Each to his/her own treatment. Some work for some, some for others. It is wonderful that there is this forum to inform so many about the possibilities out there besides just drugs, for those who may choose a different path.

I am going to try the Inclined Bed Therapy. That sound promising; however, I can't wait until Dr. Dake's study begins and I can have the CCSVI procedure. Have had the MRI and consult. Am in line for the procedure as soon as the study begins!

Dr Drake

Posted: Tue Dec 22, 2009 7:36 am
by nomissbehaven
Hello katie41, Is Dr Drake in Detroit or Buffulo or is he even is the U.S. I am going to discuss Dr Zambonie,s research with my cardio Dr only because he is the leader and one of the top stenosis surgons in the U.S. I want to believe that if there is any narrowing or blockage in thies areas that it has not been done for other reasons in other people.Thanks for your imput and stay well.

Posted: Wed Dec 23, 2009 2:24 pm
by Katie41
Hi nomissbehaven, Dr. DAKE is in Palo Alto, CA at Stanford. Lots of people try to call him Dr. Drake, probably since there was Dr. Drake Lamoray, or something like that, that the character Joey was in "Friends". LOL

There is a tremendous amount of info on the research by Dr. Zambonie, the Buffalo study, Dr. Dake's patients who have had the procedure, on CCSVI,one of the Forum pages. The first few threads, "stickies", have much of the research info.

Best of luck!!! :)

Posted: Tue Jan 05, 2010 6:30 pm
by SaintLouis
Hi Katie41,

Would you mind sharing specifically what your chelation procedure was? IV or oral or over the counter....I am looking into it for myself and really don't know where to start.

Thanks for any insight.