Posted: Wed Aug 17, 2005 4:01 am
Marie, I was joking with Sarah about the " jock". I knew I would provoke you to explain the word.
How did your appointment go?
How did your appointment go?
Hi Ice! It went great. She's a total sweetheart and she uses the Marshall protocol in her office for primarily CFS and FMS I take it. She is going to read all the posts here on this forum in her investigation of the Wheldon regimen. Please, others, if you read this and have been taking abx and are better, make a post and tell how you know you are better so she can read it. (others can read it also for that matter) Thanks Ice for the clear entry detailing your recovery.
I will say it again, if you are new to abx and you read all the posts on this forum and the regimens section, it is not a clear reading of people getting better. It sounds vague and a lot like the therapy is causing problems for people especially at flagyl times, without people always coming back and saying they are better than they were before the flagyl pulse, or even before they started.
It is the nature of a forum that it is for the forum members to share with one another and support. But these pages are also monotired by people on other regimens or who are considering using it, even some like my doctor who wonder if they should prescribe. (my other doc watched the ldners.org site to decide if he should prescribe it for me or not. This is why I asked for "DATA" here) When you post here, your words tell others if the regimen works for real ordinary MS patients with no assurance of a CPn culture. Yes you can direct people to the VU patent, but those people were all positively cultured for CPn. This forum represents a cross section of MS patients. And like it or not what is entered here is data to those who read it: it's data about real people doing what is considered a fringe treatment to most of allopathic medicine.
If you believe that abx have helped you, can you think of a specific way to describe HOW you know you are better that people who do not know you and have never seen you before you started abx or now would understand? If so please add to your regimens log or your personal thread for abx this info. Sarah says she rides her bike, well heck! That's convincing information since she also told us she was almost an edss 8! Ice jogs! 2 miles! That's convincing. I know what jogging is, and she states she was an edss 5-5.5 before. If you say "I had to go around the mall in an electric cart and now I walk on my feet for 2 hours and shop" that's a real difference I understand. I don't know what "I'm better" is to you if that's all you tell me, and neither do others who monitor this forum and page for information about the approach. It's this lack of clarity that causes people to post things like "are any neurologists taking notice?"
Anyway, back to my appointment: My task is to investigate the Marshall protocol with an open mind since she has seen good results with it and prepare to discuss the 2 regimen's pros and cons on our next appointment -2 weeks when all my lab will be back. I already have a bias against MP because of the vit D angle (they keeep d very low with Marshall on purpose). Her task is to investigate the Wheldon plan and see how she feels about doing that for me instead of what she knows and uses already with results. Sarah already clued me in to the post on this abx forum about marshall and I have read it. If anyone here is using MP please do email or even PM me.
Blessings
Marie
