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New website on Chlamydia Pneumonia (Cpn) treatment/research

Posted: Tue Sep 06, 2005 7:55 am
by Jimk
Hi all-
Wanted to let you know that we have a new, noncommercial website up on Chlamydia Pneumonia (Cpn) treatment and research:

CPn Help

I wanted to have a central place for information that crossed diffferent disease diagnoses so we can compare, contrast, and get patient reports as well as all levels of information from casual to technical. David Wheldon, Charles Stratton, Sarah Wheldon and others have lent their support, and we hope to have expert discussions as the site develops.

Please take a look, register, and participate in making comments, posting on the forums and helping us build the community, whether you are just interested or actually using antibiotic treatments
Jim

Posted: Tue Sep 06, 2005 5:32 pm
by mrhodes40
HI! i just wanted to say I am registered at the site also and am posting material there as well to help a little bit. We have an impressive research archive just getting online. We have links to actual citations or abstracts with links to places to buy the whole citation should you wish.

It should be a wonderful resource for people interested in the research in the field. Did you know a researcher looked at why it is that some people can see CPn and some cannot and did a research paper on the answer to that? We have that. Lot's of interesting stuff! take a look!
Marie

Posted: Wed Oct 05, 2005 10:26 am
by MacKintosh
Jim / Marie - The site is excellent. I have directed every doctor I've come in contact with in the past month (seven, I think, now) to the site for info and for the great value of having all the studies listed in one place. Bravo!

Posted: Sun Nov 06, 2005 12:48 pm
by MacKintosh
Hi, everyone - It's good to see so many familiar names from here now posting over at CPn Help.org !!!!! The only problem is, we need to keep posting here, too, to get the word out that our antibiotics protocols are really having an effect on our MS, chronic fatigue syndrome, rheumatoid arthritis, etc.

As for me, it's been one full month today on antibiotics with virtually no side effects and zero NEGATIVE effects. Not bad, for starters.

Posted: Sun Nov 06, 2005 12:51 pm
by kitkat2
Hey, MacK! How are ya'? :D

Posted: Sun Nov 06, 2005 12:59 pm
by MacKintosh
Doing peachy. Brain fog basically gone, no new symptoms. For one month's investment in abx, I'm just happy having my old, quick brain back. No godawful, debilitating exhaustion any more, either. If the next month brings me feet which no longer 'vibrate', I'm a happy camper. My 'next' MRI isn't for four months and I'm hoping it will show reversal so I can send copies to the naysayer, entrenched, skeptical doctor I fired. And how are you doing with the abx, (or should we do this under ANTIBIOTICS)?

Posted: Sun Nov 06, 2005 1:07 pm
by kitkat2
I am so happy for you! I am in the thick of it[ax]--especially today-very stiff, painful muscles--major frankenstein stuff, you know. :wink:
I see my neuro in 4 days, to discuss switching from copaxone as I have begun worsening since Aug. I hope I can walk in there without wall walking, at least, so that he won't downgrade me from rrms to spms(!?)
Oh well, I've never liked the guy--
Here's to your recovery--may it be speedy and permanent! :D

Major frankenstein...

Posted: Sun Nov 06, 2005 8:14 pm
by Jimk
KitKat- I like your phrase "major frankenstein stuff" of which I'm in the middle myself. I generally get more energy from Tini pulse (on my 4th day) but this one also got major muscle and joint pains, and brain fog. Added the evening doses of NAC and abx, and I couldn't keep my burning eyes open and fell asleep on the couch-- unusual for me. Still, it's killin' stuff.