I am SOOOO exceited to find all of you!!!!!
Posted: Sun Jan 29, 2006 9:12 am
My mom has a diagnosis of MS for about 5 or 6 years now. She has been sick for at least 30 years with what was FM. My whole family is sick. I have been sick for 25 years with FM and recently diagnosed with chronic late stage Lyme. My daughter has also been diagnosed with a very clear Lyme that was likely passed from me to her. My son is also sick but not yet diagnosed. My dad had Lupus so they thought, and passed away 2 years ago.
I have been working with a doctor for about 11 years and we have been dealing with my own health by treating possible infections. I am PCR positive for Mycoplasma Fermentans, but everyone else is negative. I am also negative for Claymedia Pnuemonia.
Recently I took my mom to see my Lyme specialist as most of you know MS seems to be sometimes linked to Lyme. Her test was negative though but that doesn't really mean much, and if it isn't Lyme it IS something else along the line of chronic infection. My mom has lesions in her brain and spine and has pretty seriouos numbness in her feet as I got to see first hand at the doctors.
She is on Avonex, but still seems really sick, but definetly better then before. She is going to be imbarking on ABX in about a month and I have been wondering what she should do with the Avonex. I am glad to seem your comments here and that most have stayed on it while treating with ABX.
It is also nice to see that whatever your poison is, the ABX recommended seem pretty close to the same in the various areas of autoimmunity. My mom will be starting with Augmentin since she has herxed from it in the past and then felt better, even though she didn't realize what was happening. I see that many here take Flagyl, do you also use Rifampin? I have been on Minocycline for about 3 years and have gained to a point of about 95% remission most of the time.
I will be emailing this website to my mom. I think she will benefit talking to others who are more in her shoes, even though we share about 95% of our sypmtoms, I have not a diagnosis of MS and so I don't take Avonex. I am also interested in supplemetns. She has a long list of to do's from doc and I would like to see if he recommends the same stuff for Lyme as is recommended for MS.
Finding this site, makes me feel more confident in my belief that AI Disorders are likely ALL just symptoms of a chronic infection of some sort. I will be looking forward to talking to all of you.
I have been working with a doctor for about 11 years and we have been dealing with my own health by treating possible infections. I am PCR positive for Mycoplasma Fermentans, but everyone else is negative. I am also negative for Claymedia Pnuemonia.
Recently I took my mom to see my Lyme specialist as most of you know MS seems to be sometimes linked to Lyme. Her test was negative though but that doesn't really mean much, and if it isn't Lyme it IS something else along the line of chronic infection. My mom has lesions in her brain and spine and has pretty seriouos numbness in her feet as I got to see first hand at the doctors.
She is on Avonex, but still seems really sick, but definetly better then before. She is going to be imbarking on ABX in about a month and I have been wondering what she should do with the Avonex. I am glad to seem your comments here and that most have stayed on it while treating with ABX.
It is also nice to see that whatever your poison is, the ABX recommended seem pretty close to the same in the various areas of autoimmunity. My mom will be starting with Augmentin since she has herxed from it in the past and then felt better, even though she didn't realize what was happening. I see that many here take Flagyl, do you also use Rifampin? I have been on Minocycline for about 3 years and have gained to a point of about 95% remission most of the time.
I will be emailing this website to my mom. I think she will benefit talking to others who are more in her shoes, even though we share about 95% of our sypmtoms, I have not a diagnosis of MS and so I don't take Avonex. I am also interested in supplemetns. She has a long list of to do's from doc and I would like to see if he recommends the same stuff for Lyme as is recommended for MS.
Finding this site, makes me feel more confident in my belief that AI Disorders are likely ALL just symptoms of a chronic infection of some sort. I will be looking forward to talking to all of you.