This Is MS Multiple Sclerosis Knowledge & Support Community

Hi,

I am a 28 year old male. I have had MS the last three years. My neurologist and I are inclined to think it is PPMS due to continued progression. My symptoms are horrible brain fog (cognitive decline), weakness in limbs(especially arms), spasticity, difficulty using my right hand. I would like to start an antibiotic protocol. As you can imagine, I am excited but also confused due to all the literature. I have a few questions.

1. Is the Wheldon protocol the best to start with. Are there competing protocols?

2. I am in central California and don't think I can find a doctor who specializes in this area. Is it alright to administer the protocol myself provided I do it religiously? I'm thinking I can probably find a general practicioner to prescribe the antibiotics.

3. I don't remember having a recurring chest infection as described in the slideshow created by David Wheldon. Are there atypical cases where the genesis of the infection might not be so obvious?

4. Is it ok to start Doxycycline and azithromycin at the same time at the full dose, rather than waiting a few weeks on the azithromyocine?

5. Is there a preference between roxithromycin, azithromycin, or rifampicin? They all seem to be interchangeable according to the protocol?

6. Beside NAC, which I understand the importance of, are all the other supplements absolutely necessary?



Thank you so much ahead of time

P.S. I posted these questions at CPn Help.org also, I just thought there might be more members here

Hello asmitty,

Here are my answers:

1. What you call the Wheldon protocol is really just a version of the Vanderbilt protocol.

2. I know from CPN that you can't get to see Mike Powell at the moment but really there is so much information on both ThisisMS and CPN that you can easily treat yourself. Even if you can't find a doctor who is wiling to prescribe for you, there are places you can purchase antibiotics online and I know where this can be done safely: you only have to ask! Many people do it this way because so many doctors have fallen into the trap of thinking that taking abx for a long period is bad for you and not thinking that for certain diseases it is the only way to eradicate the disease. Tuberculosis, for instance, won't be got rid of by taking three months of antibiotics and neither will chlamydophila pneumoniae, which some family doctors haven't even heard of yet.

3. I didn't either, well, until a few years after developing MS, that is.

4. Yes, if you think you can stand it. I think most people could.

Roxithromycin is not available in the US and rifampicin is not easy to start off with: it really should only be taken with a doctor to oversea you because of the possibility of liver damage.

Vitamin D3 is necessary because people with MS often have very low levels of it. All the B vitamins are beneficial to the brain, especially methylated B12. Anything that works as an antioxidant is also beneficial, including vitamin C. If you are taking any abx, probiotics are also needed, taken two hours apart from the antibiotics.

There are now many more abx members at CPN than here, which is a pity because ThisisMS people probably think that antibiotics are a lost cause: yet one more 'miracle cure' that just doesn't work.

Sarah

Thank you very much Sarah. I'll continue posting on CPN help from now on.

See you there!!