This Is MS Multiple Sclerosis Knowledge & Support Community

The Australians are leading the way again;

For those of us with MS this video will start to connect the dots or fit the missing pieces of the infamous Puzzle.
Excellent presentation, hope it goes 'viral' real quick ;)
Thank you to https://www.facebook.com/beyondthebandaid

Mick, it appears that very few people can do a pulse for more than a couple of days but have to gradually build up to it over time. How is Trish now? Some people recover very quickly but others take longer. Stratton is researching on how to make the treatment easier, but all this takes time and unfortunately we have all come in at the hard end. Still, better that than the alternative. Only do another pulse when Trish feels up to it: there isn't a timetable!

Sarah

Hi Anecdote, Sarah, has David received the emails from Dr Paul Thibault, the NZ connection and I?

Regards,
Nigel

Anecdote wrote:Mick, it appears that very few people can do a pulse for more than a couple of days but have to gradually build up to it over time. How is Trish now? Some people recover very quickly but others take longer. Stratton is researching on how to make the treatment easier, but all this takes time and unfortunately we have all come in at the hard end. Still, better that than the alternative. Only do another pulse when Trish feels up to it: there isn't a timetable!

Sarah

Third day after stopping pluse Tricia voice is slowly coming back and feeling better but she still gets tired . I think that it is also because she takes Baclofen for spacticity. Anyway Sarah i will keep you posted, thanks for the info Mick

NEW CLIP- educating the educated!!

Mick, that is good but tiredness I am afraid, is par for the course, as is mild depression and weepiness whilst pulsing. When I was pulsing, it would often take only half an hour before I burst into tears! Tinidazole was slightly better but not that much. Since David an I were both on the treatment together, I rapidly discovered that it was best if we didn't pulse at the same time!

By the way, when I was able to finish treatment, I was so happy.

Sarah

Nigel, yes, I think so but will check later......................Sarah

Hi and Thanks Sarah.

I have a question, is there any recommendations for retesting bloods during the protocol period? I wondered if at the six month point would give any relevant feedback on progress?

I am at day 154 and to be honest I am still going backwards and most of this is caused by secondary porphyria and the die off from my CPn bacterial farming that I have been doing for years.
I find the current symptoms are based on past injury sights and wear and tear on my joints. I'm 53 yrs young, 7-8 years of PPMS and I have been very hard on my body throughout Life so I am not surprised that I am feeling the effects of die off. The fatigue and weakness plus cog fog is bugging me as I know that staying positive is vital during this time more than ever in Life.

Interesting to hear that David was on the treatment as well. Insight and personal experience is a must imo! Is there any reading about David's process, I would love to learn!


Nigel

CPn is again found at the start of a disease process!

The latest research has proven a link between inflammation and atherosclerosis. In fact, it's now known that inflammation is responsible for the birth and growth of atherosclerosis. Here's how.

Cholesterol plaque begins, not as a disease, but as a normal, healthy response by the body. Cholesterol plaque contains many of the inflammatory elements that are designed to destroy infectious germs such as Chlamydia pneumoniae - the Heart Attack Germ - and repair damaged tissue. These elements are drawn to injured and infected arteries as part of the healing process.

One of the most important inflammatory elements are cells from the immune system called macrophages. As the animation above illustrates, when the wall of an artery is injured, these immune cells travel to the site of the injury and burrow into the artery wall. They produce healing inflammation in the surrounding tissue, which kills germs and repairs cells.

Unfortunately, immune cells can also be infected by germs such as Chlamydia pneumoniae. When immune cells burrow inside the artery, they carry the germ with them, creating more infection in the artery.

Even worse, infected immune cells can suck particles of cholesterol from the blood stream and carry them into the artery wall.

Inflammation is designed to be helpful only in the short-term; long-term episodes of inflammation can do great damage to the body. Since plaque is naturally drawn to the site of inflammation, long-term infection and inflammation continually draws cholesterol plaque to the artery over an extended period of time.

As the years pass by -- and infection and inflammation secretly simmer away inside their unsuspecting victims -- layer after layer of plaque is deposited inside the artery. These layers build into mounds of cholesterol that reduce the flow of blood through the artery, eventually causing many of the symptoms of cardiovascular disease, including strokes and heart attacks.
http://www.theheartattackgerm.com/a%20short2.htm

As this page is headed Antibiotics for treating ms in Australia I am wondering IF there is in fact any one here that is in Australia and can answer my question that being IS there any Dr in Australia who is in fact using or trialing Dr Wheldons treatment and if so where the bloody hell are you. My wife is now starting into stage 2 and I am her carer, I would travel anywhere in the country just so that she can be see a DR who has the guts to put their hand up and say that they are willing to treat her. At the moment she is quite mobile and speech is fine, eyes have some flickering and difficulty with focus, this gets worse with heat and living in Perth Western Australia summer is always hot. Any way IF there is someone here who can put us onto a Dr anywhere in Australia who is doing this treatment please let me know. At the moment the Neuro has her on Gilenya fingolimod .

Thanks for all the comments already posted it only encourages me.

Jennie wrote:As this page is headed Antibiotics for treating ms in Australia I am wondering IF there is in fact any one here that is in Australia and can answer my question that being IS there any Dr in Australia who is in fact using or trialing Dr Wheldons treatment and if so where the bloody hell are you.

Try Dr Thibault in Newscastle.
http://www.cosmeticcentre.com.au/site/i ... lay=329348

I only just realised he explicitly advertises on his website. I saw him a while back in regards to CCSVI. I have tried the ABX's a few years back using prescriptions by my own GP.

Jennie, There are at least three treating physicians in Australia - probably more. On the CPn Help.org site, we have at least a dozen members posting their progress. If you hop over there, you can private message them and ask for specifics.

Thanks for the replies every one I will try out the links and see what I can find out as I live in Perth Western Australia I am finding it difficult to get any up to date information on who will do the treatments and as you all know travel is becoming difficult although my Hubby is more than willing to travel to wherever is needed, it would be much easier to get a treating dr here than all the travel to the east.

Please everyone keep up the information and posts it is most encouraging

Thankyou one and all.

I did my research, and provided my local GP the info from the web, and he was prepared and did prescribe the necessary ABX's.

Anecdote wrote:Mick, it appears that very few people can do a pulse for more than a couple of days but have to gradually build up to it over time. How is Trish now? Some people recover very quickly but others take longer. Stratton is researching on how to make the treatment easier, but all this takes time and unfortunately we have all come in at the hard end. Still, better that than the alternative. Only do another pulse when Trish feels up to it: there isn't a timetable!

Sarah

Hi Sarah Mick &Tricia here, we have not written but we have been busy. First was a blood test to test for Chlamydial. Result negative no antibodies demonstrated. Antibodies may not be produced in infection with Chlamydia especially in children or immunosuppressed patients. It also said it was hard to detect and that Tricia would have had to have the blood test when ms first appeared, which was 33years ago. The second test that Tricia had was a MRI. We had a scan that was done in 2004 and compairing it to the one just done they are the same.No significant changes in the periventricular white matter particularly those confluent lesions adjacent to the occipital horn of the lateral ventricle and the lesions in the corona radiata. No brain stem lesons could be identified.The optic nerve is unremarkable. Cervical spine no demyelinating plaque seen in cervical cord, everything else normal. Stable was the conclusion. The main thing that i want to talk about Sarah is Tricia 4th pluse Her first two were no trouble . Her third she had some reaction and we broke it into two parts and she got it done. But the 4th pluse was very bad. On the third day Tricia had a reaction that was very scary . I was ready to call ambulance. It was like she had a fit or a stroke. Her right arm was stiff across her body and could not be moved, she was in pain all over and could not be touched, she lost her voice and could not swallow.After a few hours of this she came back little by little. She has now been off all Antibiotics and supplements for 4 days and she has regained her speech and swallow. Her right arm is still weak but the pain has gone from her body.Tricia wants to start back on antibotics tomorrow. I would like to know what you and David think. Could it be that in long term ms that the damage has been done and the attacks have stopped and results of these attacks are on going, god forgive but i am starting to sound like neuro.Any way Sarah i would like to know what you and David think. Mick & Tricia