This Is MS Multiple Sclerosis Knowledge & Support Community

Gogo wrote:

Anonymoose wrote:I am following the Wheldon protocol and have found that mcp helps immensely with the resulting inflammation. I've done a little research on mcp and suspect that it's ability to bind to inflammation causing galectin-3 (present in elevated levels in ms and arteriosclerosis plaques) is what makes it so helpful to me. It also acts as a gentle chelator. It might be of use to pwms even if they aren't on an antibiotic protocol so I thought I'd share.

How much does this help?

What is the suggestion by Vanderbilt or Wheldon for avoiding inflammations and infections promoted by antibiotics? Both can occur when abx depletes one's immune system after a few months use of it. I really doubt that the available probiotics can take care of all these problems. Inflammation is a very bad thing for MS patients and it causes real deterioration in MS, not just some bad days.

For me, the modified citrus pectin has eliminated almost all of the abx induced inflammation.

I started the protocol 9/9/12 and was experiencing bearable but really annoying and sometimes painful inflammation that basically felt like a very mild ms flare in certain areas of previous flare activity. I was taking daily epsom salt baths and frequent ir saunas to purge toxins. That helped a lot in the beginning but at some point, it wasn't enough to completely knock out the inflammation. I tried charcoal and chlorella and wasn't impressed (admittedly, I didn't take a lot as some who follow the protocol do).

When I started taking mcp, the inflammation and most of the fatigue cleared out within days and didn't come back until 7 days after my first flagyl pulse. Then I experienced very mild hand buzzing, some fatigue and a bit of leg achiness. Inflammation (mild!) subsided within 4 days post and I continue to slowly regain sensation in my hands.

The reason why both this forum and cpn(nodot)com(dot)org are such a help is the sharing of such information. Knowledgeable doctors are so few and far between that many people do end up treating themselves which to my mind is better than no treatment. In 2004 I probably would have benefitted from mcp.
Sarah

Not having any side effects so far or reactions to abx, does it mean anything? But, I would join those who would like to get information on treating the occuring side effects if they happen later on.

Gogo, no it doesn't mean anything: some people don't but still recover. Mackintosh was one such person. I got a Jarisch-Herxheimer reaction for a week or so, then all was plain sailing also, apart from a week or so of intractable thalamic pain in my right arm after the third pulse. My right arm had been paralysed so it was probably a hot bed of infection. There was nothing I could do about this: I just had to live with it while it lasted. It went and I have never got it again. You could ask Stratton or David or ask him through me until more doctors know about these things.

Sarah

Anecdote wrote:Gogo, no it doesn't mean anything: some people don't but still recover. Mackintosh was one such person. I got a Jarisch-Herxheimer reaction for a week or so, then all was plain sailing also, apart from a week or so of intractable thalamic pain in my right arm after the third pulse. My right arm had been paralysed so it was probably a hot bed of infection. There was nothing I could do about this: I just had to live with it while it lasted. It went and I have never got it again. You could ask Stratton or David or ask him through me until more doctors know about these things.

Sarah

Sarah, thank you. I thought that reactions would occur as endotoxins get released. So, I was expecting respiratory infection, stomach problems, etc. I also read that some people had certain reactions here in tims.

Well, some people do and some people don't: it's a new way of treating MS and nobody knows everything yet!

Sarah